Hola! I am Daisy.
I need your support in dealing with my incurable genetic disorder called Neurofibromatosis Type 1 (NF1) or Von Recklinghausen's disease (VRD).
I have benign tumors growing spontaneously on the nerves all over my body. Many of them put pressure on my nerves and give me constant chronic pain. The pain level is highly influenced by my well-being and stress level. I am beginning a series of operations to get rid off the three most hurtful and troublesome tumors and hopefully reduce my pain level.
During this process and the following recovery, I am not able to work and provide for myself. As I receive no support from my family I reach out to you, my heart tribe. Now that one of the three tumors might even be malignant (awaiting biopsy results in mid November) my friends finally managed to make me acknowledge: I need to reach out for financial support.
As there is hardly any experience in how to properly deal with NF1, the recovery process and the associated costs are hard to predict. For the best possible healing conditions I will need to cover my living and medical costs for a period of at least 6 months. These costs include nutrition changes and supplements, medical assessments (MRIs), treatments and medicines but also basic living support. These are estimated at €18,000 total.
In the video I explain shortly the general situation, but you can find the longer, more detailed story in this video .
I have not shared this life aspect with the public before which is way this feels extremely vulnerable to me.
What I share comes from my heart.
Thank you for your time and empathy. Any form of support is highly appreciated.