Hi, I'm Cleotilde Woosley but my friends and family call me Cleo. When I was 15 months old, I was diagnosed with a rare syndrome called CCHS: Congenital Central Hypoventilation syndrome. I have a genetic disorder where I breath in oxygen when I fall asleep, but I cannot breathe out on my own. My syndrome is very rare with only 1,500 to 2,000 cases in the whole world and very few doctors who can help with this untreatable syndrome. My parents and I located a doctor at the Laurie Children's hospital who offers some help for this rare syndrome and so we are trying to raise money to go see this CCHS specialist in Chicago, Illinois. We ask for any donation that you can help us with in our upcoming trip in November 2025.

Thank You!

Cleo