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Hello! My name is Cecelia Rose Longtime Sleeping. I am currently 3 years old and was recently diagnosed with EBV Driven Spindle Smooth Muscle Tumor(s) on my liver, lungs, abdominal wall, and colon. It is a very rare tumor cancer that is most commonly seen in organ transplant patients when discovered. As most of you know, I received my new liver on June 14th, 2022, just 13 days before my first birthday! My journey has not been the slightest bit easy for me as I've been in and out of the hospital my whole life for my liver, but that does not stop me from being the spunky, wild child I was meant to be!
With my recent cancer diagnosis, it came in a shockwave of emotions as I spent the last 10 months hospital-free. My main hospital for this is the M Health Fairview Masonic Children's Hospital in Minneapolis, MN. That is 8 hours away from my home, but now I travel all the way to Cincinnati, Ohio for my cell transplant treatments every 4/5 weeks until further notice. This GoFundMe will help alleviate financial stress for my travel, lodging, and food.
We will continue to keep everybody updated as we find out along the way. Thank you for continuing to keep me in good thoughts and prayers.
xoxo - Cecelia




