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This is Carley! She has arthrogryposis, a muscular disorder that has caused her to have a global delay and be trach and g-tube dependent. She is constantly improving and showing us what she can do, in subtle ways!
We are currently focusing on trying to get her better core control because this is crucial to developing into independent sitting and someday standing and walking.
We have found the deal of a lifetime to own our very own AllCore 360 unit for at-home use for her therapy 3x a week! However, we need a little help raising the money to purchase it. Retail on these life-changing machines is over 79k. We have the opportunity to get one for us to use FOREVER for 21k!
Carley will be able to use this as she grows and develops for her lifetime, which we expect to need long-term use for ongoing muscle and reflex development! It will teach her balance, strengthen her core and spine (prevent scoliosis), and allow for development in motor neuron brain patterning, fall reflexes, and we expect global gains in vision, dexterity, and all the muscle groups.
This is our next big focus for her to move into sitting/standing.
If you feel called, please help us raise the money to get one of these for her to use FOR LIFE!
Here's my shameless plug for the AllCore team in getting Carley a trial ride, getting on Zoom with me, and dealing with all my questions! They have been so great! The founder/creator was a PharmD from OSU! (Then went to DC). This has been MONTHS in the making and we are SO CLOSE!
Here's a video if you want to get the basic rundown on what this is and what it does!
Behind the scenes of medical kiddo life, is a momma who continues to research, fight, and innovate to open the door of possibility for our girl! If you've met or followed Carley - to know her is to love her, she's a giant light in this world shedding awareness of medical life wherever she goes and sharing our story of HOPE and how she forever changed our family in all the BEST ways!

