Support Caleb, Bri and baby Harts’ BWS journey

Hi, my name is Jessica and I’m creating this fund raiser to help Caleb,Bri and baby Hart.

Caleb and Bri are first time parents. At the end of the pregnancy they were told there could possibly be some complications as there were signs of a possible syndrome with baby Hart as well as some cysts on his kidneys. Baby Hartlyn Gray Buck was delivered on June 4th. He was sent straight to the NICU and it was later confirmed that he does in fact have a rare syndrome called Beckwith Wiedemann Syndrome (BWS) as well as a cyst on his liver, 3 cysts on his kidney and an enlarged heart. Baby Hart has been off of his oxygen but the enlargement of his tongue prevents him from being able to fully stay off of oxygen. Because of these complications Hart has not been able to go home. It has been determined that the best option for baby Hart is to go to Philadelphia Children’s Hospital where they have a team that specifically specializes in BWS and plastic surgeons on staff that specialize in pediatrics with BWS. Bri and Caleb are both spending all their time with their newborn baby and both need to be present with him in Philadelphia. I am creating this go fund me in hopes that all of their family and friends can come together and make this trip just a tad less stressful because we all know when you’re with your baby in the hospital there are no funds coming in. All money raised will help them with travel expenses, and any bills they can cover. Most importantly please keep this little family in your prayers and thoughts as they navigate these roads for the best care for Hart!