CACNA1E is a rare genetic condition causing intractable epilepsy, global developmental delay, and dyskinetic movement disorders. Families gather yearly to build relationships, share resources, and enjoy outings with fellow rare warriors.

This year, the CACNA1E meeting will take place in Orlando, FL! This will be the 3rd family meeting, but the first one in the US. On March 28, 2026, families will convene at the Melia Hotel for the meeting, followed by dinner. On March 29, families will have the opportunity to go to Disney World and/or hang by the pool.

The CACNA1E Foundation is raising funds to help with expenses related to travel, food, and Disney World tickets.

To read about our warriors, please see the CACNA1E Foundation website https://www.cacna1e.org/