- C
- B
This is for my grandson and his parents. Brooks Ryan Bowman is due to come into this world in November, 2025.
We are not the type to ask for anything but here is what they are up against:. Doctor appointments in Dallas twice a month from now until November. Then they have to move to Dallas the first of November so they are close to the hospital. Medical bills with Open Heart Surgeries for Brooks. Living in Dallas for several months after the surgery, food, bills, gas, no major medical insurance, living, it goes on and on.
We know God is going to bless Brooks as well as his parents. This will be a long road, but with our family and friends, we they will get thru it.
But the expenses start next month for this young couple. Cade works for Henderson ISD. Savanna was supposed to start a new job with Henderson ISD this month. They are a sweet, young couple who has put this in the hands of our God.
Below is a post from his mom, Savanna. It is long but will explain what this sweet couple and this baby boy, are up against:
This is a really long post, but we ask that everyone please take the time to read it. If you know Cade Bowman and I, you know we are not openly emotional people and we are DEFINITELY not the "serious type," doing everything we can to get out of serious situations and avoiding gut wrenching moments. This being said, please be patient while reading this because it has taken a lot for us to share this news.
At around 8:30 AM Tuesday morning Cade and I were called back for our anatomy scan of Brooks, excited as can be to see our sweet boy. We sat through about an hour of seeing him and laughing and talking about how stubborn and charismatic he will be. When the scan was over we went to speak to our doctor about what he saw.
At about 10:00 AM we were given the news that he has a heart defect. Our eyes were immediately watery, we were in shock, and it felt as if the world had stopped. He told us that Brooks has a congenital heart defect (CHD) called Truncus Arteriosus, and that it is very rare and we will need to see a pediatric heart doctor in Tyler to have more answers because he did not have many.
Later that day, I received a call and was told they had an opening the next day (yesterday) so we snatched it up. We were told going into the appointment that they might not have many details because his heart is so small right now. That being said, we were prepared to go in and not have any more answers but that was not the case. We met with an amazing doctor and went through another long ultrasound, but this time it was only of Brooks’ heart. The doctor came in after the scan and explained SO much more about our sweet boy’s special heart and first off, we would like to say that only 1 in 15,984 children are born with TA… that’s about 230 children per year and he is one of them.
Now, to explain his condition, I’ll describe a normal heart. The typical heart develops two separate vessels: the pulmonary artery-which carries blood to the lungs- and the aorta- which carries blood to the rest of the body. During Brooks' development, his heart did not form these two vessels and instead formed one single large vessel that serves as both the aorta and pulmonary artery. Along with this, he was diagnosed with Ventrical Septal Defect (VSD) which is when a hole is formed between the heart’s two lower chambers which allows for oxygen poor and oxygen rich blood to mix, instead of being distributed properly and separately. As if all of this news wasn’t overwhelming enough, we were told that the valve of his truncus arteriosus is currently not functioning in the best way, and to break that down in the easiest and least amount of medical terms as possible, the valve does not close all of the way which causes blood to flow backwards. This valve was noted to be particularly thick.
Cade and I were told that the only thing that could change before birth is the function of his valve; everything else has developed to its full potential. Knowing this, there are two different things that could happen: a partial heart transplant, or truncus arteriosus surgery. The surgeries are a little more complex to translate through a Facebook post so I will share the most important details of each.
Truncus arteriosus surgery, or Rastelli repair, involves tubes and patches and will require multiple surgeries throughout life- all being open heart surgeries. However, this surgery has been done many times and has seen outstanding positive outcomes. The possibility of Brooks having this surgery is dependent on whether his valve starts closing and functioning properly.
A partial heart transplant involves tissue from an infant heart that is not fully functioning, so we would need a donor. Essentially the doctors find a donor with matching arteries and valves and attach them to his heart, essentially forming a properly functioning heart. This surgery will be our only option if his valve does not start functioning properly. Luckily for Brooks, if his body takes the partial transplant, he will not need multiple surgeries on his open heart. On the downside, we will have to wait to find a match.
With ALL of this being said, we are reaching out to ask for prayer. We have never been the type to publicly ask for help, but we truly do wish for it. We have prayed and will continue to pray through this entire process and we would really appreciate for anyone to take the time out of their day to pray for our sweet Brooks. We have been praying for Brooks’ valve to function properly and to heal with God’s grace, for him to have a swift recovery, and to match with a donor quickly.
In addition to this, we are unsure if we are having a baby shower because we do not know how long he will be in the hospital. As everyone knows nothing is predictable with delivery, so we will have to stay in Dallas close to the hospital for several weeks prior to birth. If you feel you want to buy from our registry, we also ask that you consider gift cards, etc in lieu of a gift as this is a big financial burden. We will leave our registry up but it will be a lot smaller, considering we are only asking for things that are necessary while we are in Dallas, long term use baby items, or customized






