Support Brixton's Fight Against Rare Leukemia

Brixton’s JMML care fund pays travel, lodging, and treatment costs during transplant

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$30,275 raised of $35K

Support Brixton's Fight Against Rare Leukemia

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We have an update on Brixton January 2026

He finished his regular treatment beginning of December 2025. Which was his trial chemotherapy he did for the first year, it kept him stable for a very long time but unfortunately didn’t kill all his cancerous cells!

With that being said they are now having to admit him and do a high dose/aggressive chemotherapy on him, followed right away with a bone marrow transplant. His father Brendan is going to be the donor and of course his mom Brianna has to cut back big time on her work hours as she’s going to be spending most of the time with brixton in hospital so dad can still work and take care of their oldest at home.

The family is going to need all the support they can get, gas cards and Visa cards are also welcome to help those expenses along with the ones at home since mom isn’t really working.. Of course parking at the hospital is also expensive. I myself am donating $300. They will also potentially have more lodging expenses after transplant as Brixton has to be within 20-30 mins of hospital for 100 days after transplant due to being very high risk.

Along with that, I will be helping with Branson when needed, he is only 6 years old. That's a tough thing to go through watching your little brother fight cancer!!! I Absolutely love these kids, they call me Gigi ❤️. They are definitely like family to me they treat me like gold!!!
Holidays are definitely better with them!!!
I will keep sharing this until his battle is over and he wins this fight against cancer.

I'm really hoping that this community comes together once again and helps out Brixton and the Lakely family!!!

This is Brianna's update!!! January 2026-
Our sweet, silly, kind loving, strong boy has officially relapsed as of yesterday. Our hearts are shattered and it’s something no parent can prepare for or wants to hear. Just when you feel like you hit a milestone in treatment and everything was going well in the snap of your fingers it can change. For those who don’t know the type of leukemia he has is called juvenile myelomoncytic luekemia (JMML) it’s a very rare form of leukemia affecting 1-2% of everyone diagnosed with leukemia. It’s hard to diagnose, it’s hard to treat and can be fatal if left untreated. When Brixton first got diagnosed he qualified for a trial the idea behind the trial was pretty much a lesser evil chemotherapy that will kill the cancerous cells and to hopefully avoid a bone marrow transplant which alone comes with many risks and complications. During treatment he spent one week every month at the hospital for IV infusions and was on an oral chemotherapy at home everyday. At the end of the day he was able to come home, this was such a blessing meaning he was handling his chemotherapy overall. Fast forward one year he finished the one year of trial drugs and while he was on them, they kept him stable and was able to get the mutation that causes the cancerous cells Down to 13% from 33%. Which is great. He pretty much lived his normal life with a few symptoms including hair loss, nausea, vomiting, bad allergic skin reaction(managed with steroid) mostly all at the beginning of treatment the only symptom that continued all the way to end was the allergic reaction to chemo everything else was finally manged with anti-nausea medicine and steroids. Unfortunately with trial drugs they just weren’t strong enough now to get the mutation completely gone. Which therfore multiplied when taken off the drugs.. He’s been off chemotherapy for 5.5 weeks and now his labs have hit there all time low, some lower then they were when he got diagnosed and his spleen enlarged again over the weekend. We were informed that the best treatment for Brixton is now to go back to Option A before the trial was ever even an option. So therefore, he will be being admitted this Sunday for pretty much the next 6-7 months with potentially being able to come home for a week at some point right before the transplant. He will start with pretty high doeses of chemotherapy over the next 2 months and go straight into a bone marrow transplant in March. We are going to have a split up family as one parent has to stay with Branson and one with Brixton. Living 1.5-2 hours away makes the commute difficult for quick family pop Ins which will already have to be minimized anyways. Our boys won’t be able to be together for the most part for the entire 6-7 months as kids under 10 can’t visit and another reason being Brixton will be extremely immune compromised and any virus can put his life at jeopardy more then it already will be.
He’s going to hit his lowest lows and chemotheroy symptoms are going to hit on an entire different level. We are beyond terrified, we are scared for our baby but know we don’t really have a choice in the matter and would take it all away if we could. We just want the best for him and hope and pray that he continues to be strong and resilient through all this! Any prayers and support is beyond appreciated more than anyone would know. If I don’t respond to every comment or every message please know we see you and hear you and appreciate you more than you know. It’s going to be very hard for us especially as we get into the routine of things with Brixton. Being military everyone knows that it alone comes with challenges being so far away from family but I know they will give the most support they can and be here for us every step of the way. We also have the best friends and community here and are beyond thankful for the support and love everyone has shown! Please just continue to pray for our baby boy

OCT 2024-
Our 1.5 year old son Brixton has been diagnosed with JMML which is a rare type of leukemia affecting only 1-2 children out of every million. His treatment plan for chemotherapy is 12 months long potentially following a bone marrow transplant. He is also a part of trial hoping to find the best cures and treatments for his condition. When we received his diagnosis we were very saddened and felt a tremendous amount of heartache as any parent would. His treatment takes place at children’s hospital in DC which therefore requires lots and lots of weekly traveling plus weekly admissions every month for the first 12 months. Although we have great insurance through the military not everything is completely covered. Including some medical bills, lodging, travel expenses and necessities. We have applied for Ronald Reagan housing but unfortunately the waitlist for this area is pretty lengthy. We are a military family that got stationed here December of 2023, therefore our closet family and support system is in Colorado and Oklahoma which makes for more traveling as my husband and I switch off to take care of our 5 year old as well. We have fallen in love with this area. The small community and support is what gets military by. We are incredibly thankful!

Thank you for your support!!!
Please keep the Lakely's in your prayers

Co-organizers2

Lory Miller
Organizer
Smithsburg, MD
Brendan Lakely
Co-organizer
Brianna Lakely
Co-organizer
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