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Hello, my name is Justin Johnson and I am hoping this will become the miracle needed to not only make the final days my wife has left on this earth more comfortable but maybe let her check off a bucketlist wish as well. My wife is Brandy Johnson "Jennings" and about 6 months ago we found out she has (pulmonary arterial hypertension) with acute chronic heart failure. Worst day of our lives.... or so we thought. Were both scared and not sure what to really expect moving foward and as time went on we learned more and more about this disease. Understanding this was a very dangerous illness we were both very hopeful that with treatment we could possibly see a far more significant quality of life as well as longevity. People with this same diagnosis were living years some 20 + years, we felt we would naturally be afforded the same general outcome as many other people seemed to be having. We were wrong! Brandy seemed to not only get worse day by day but the amount of symptoms she was acquiring in such a short amount of time was terrifying, she had also started having symptoms of something that was in the realm of her disease but more significant and in a much shorter time frame than anyone else we could find to compare her progression to. Now we do have the worst day of our lives ,we learn that not only will the years we thought we would have left are not possible but months are looking like the most likely best case scenario, and its so possible its almost likely that we're looking at a couple of weeks at best. Well the lung disease puts strain on the heart and over time was supposed to weaken the heart with the expected symptoms making life more difficult and eventually impossible. Brandys heart has not responded well at all. In the last 3 months she has progressed more than someone with the same disease normally would progress in 10 years. Her heart is so damaged by this she now faints multiple times daily, she is swollen most days so bad its unbelievable, she is also extremely resistant to the water pills or lasiks prescribed to help keep the fluid build up down, she cannot breathe and she is struggling to sleep most every night feeling like she is suffocating, she has every single symptom that someone has with class-d heart failure. She not only has acquired every symptom they are extremely severe and aggressive. I watch my wife die more and more every day. She is 39 years old we have been married going on 21 years and have 5 kids. Dr. Said on the last trip we should consider hospice and that being with family at home is what he recommends. Double lung and heart transplant is her only chance of surviving this and even if we wanted to consider a transplant her heart surley will not make it long enough to even possibly entertain it as a real possibility. My wife will die from this and its become so aggressive and severe We know our goodbyes could come really at any moment. Im beside myself, I wasn't aware that a person could feel so helpless, the pain and the heart break I feel cannot be described in words. I cannot believe that I am going to have to bury my best friend, my lover, my wife , my absolute everything our kids are numb and cant process the reality of the last 6 months as expected. Brandy has been a amazing mother to our 5 kids. She has been an amazing wife, an amazing friend, she is generous , and loving ,she genuine and I love her more than she will ever know. Given the chance I would marry her over and over given the chance to live this ride again. I would love nothing more than to make her last days here more comfortable with mobility such as a electric scooter, and a bed that props her up right so she can breathe to sleep. To make her suffering less period would be the most appreciated gift and blessing.
thank you for reading and thank you for your help if you chose to do so.. God bless you all. Cherish every second you have with them.





