Support Brandy Alexander's Fight Against Epilepsy

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Support Brandy Alexander's Fight Against Epilepsy

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Hello. My name is Brandy Alexander and I have severe epilepsy. It all started back in 2016 after the birth of my second child. My oldest son, who is 12 now, received his diagnosis of autism. In 2018, I received the official diagnosis of epilepsy after I had a seizure and went into a coma (Statys Epilepticus). Shortly after I came out of the coma, my youngest, who is 9 now, had started the process of receiving his autism diagnosis. He had already faced so much with having to wear a helmet for 8 months and PICA. PICA is a eating disorder where he wants to eat non-edible items (dirt, styrofoam, plastic, etc.) In 2020, I had a Vagus Nerve Stimulater put into my brain to hopefully help with my seizures. But it did nothing!! They continued to get worse and worse. They eventually took my driver's license, told me I couldn't be alone with my kids, cant even shower or bathe unsupervised. Also in 2020, my oldest, who was 7 at the time, had his first seizure. He was soon diagnosed with a rare form of epilepsy that is common among autistic children called Lennox-Gastaut Syndrome. He has multiple types of seizures that are uncontrollable. He now takes 3 daily medicines, he has 2 rescue medications, and has had 2 surgeries himself. A Vagnue Nerve Simulator placed and what they call a Corpus Callosotomy. They completely disconnected the two halves of his brain. During all of this, my seizures continued to get worse. In December of 2023, I had another big seizure and was, yet again, in a coma. I had very little brain activity. They even talked to my family about turning off my life support. The next day, the brain activity returned, I woke up, and was soon able to go home. Now I'm facing another surgery since nothing has seemed to help. My doctors and the Epilespy Panel have met. They have decided that I will be getting a RNS implanted into my brain. They will be removing a piece of my skull, implanting the device, and then putting the skull back. My consultation for this surgery is on February 9, 2026 with surgery soon after.

I am asking for donations because we are on a fixed income and have no way to pay for things like transportation back and forth, food for whoever stays with me, and child care for our 2 autistic boys during this time. Anything would be greatly appreciated but even if you can't help financially, we could use all the prayers we can get. Thank you and god bless

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Elizabeth Hunt
Organizer
Greenville, KY
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