Blakley is a sweet, kind, smart, and beautiful two-year-old girl who lights up every room she enters. She has a smile that melts hearts and a spirit that radiates pure joy. Recently, our world was turned upside down when Blakley was diagnosed with Rett syndrome, a rare neurological disorder that primarily affects girls.

Rett syndrome is caused by a genetic change — nothing we did and nothing we could have prevented. Over time, it can bring serious challenges with movement, communication, and everyday tasks most of us take for granted. Many children with Rett syndrome also face seizures, breathing difficulties, and other medical complications. Despite all this, Blakley is still the same bright, beautiful little girl we all love.

What this means for Blakley’s future

While Rett syndrome is not something that can be cured right now, it is something that requires lifelong care. Children with Rett often lose skills they once had and eventually need support with walking, eating, communicating, and daily living. For Blakley, this diagnosis means she will not be able to live independently. She will always need help — but she will always be deeply loved and surrounded by people cheering her on.

The financial reality

Caring for a child with Rett syndrome comes with enormous medical and therapy expenses. These include:

• Regular doctor and specialist visits

• Physical, occupational, and speech therapy

• Medications and possible seizure management

• Adaptive equipment (like communication devices, wheelchairs, and braces)

• Hospital stays or surgeries that may be needed along the way

• Newer treatment options that can cost hundreds of thousands of dollars each year

Even with insurance, the out-of-pocket costs can reach tens of thousands of dollars annually — and this is just the beginning of Blakley’s journey.

How you can help

We are creating this fund in Blakley’s name, and every dollar will go directly toward her care — therapies, medical needs, equipment, and anything that helps improve her quality of life. Your support will not only ease the financial burden but will also allow us to focus on what matters most: giving Blakley the happiest, fullest life possible.

We’re still processing this news and adjusting to this new path, but one thing is certain: Blakley is surrounded by love. Your generosity, kindness, and prayers mean more than words can say. Thank you for helping us support our sweet girl as she faces this journey with courage and grace.