Meet Benjamin: Our Joyful Warrior with Angelman Syndrome
Hi,we are the proud parents of our incredible son, Benjamin, age 2 . Benjamin is pure light—he greets every day with a wide smile and infectious laughter. However, Benjamin is also a fierce warrior, fighting a battle few ever see: he lives with Angelman Syndrome (AS).
Angelman Syndrome is a rare neurogenetic disorder that causes severe developmental delays, balance issues, and communication impairment. For Benjamin, this means every small victory—every giggle, every attempt to move—is hard-won. For years, we’ve been told that significant progress in mobility and strength would likely be out of reach.
A Shot at Unlocking His Potential We refuse to accept the word "impossible." We have found an incredible opportunity that offers Benjamin his best chance yet: a specialized Intensive Therapy Program. This program is not standard physical therapy; it is a high-frequency, rigorous approach designed to rapidly build muscle memory and forge new neural pathways. It is the training that could finally give him the core strength and coordination needed to move closer to critical milestones, like independent walking or assisted standing. This therapy is his shot at gaining the strength we were told he never would. Why We Need Your Help: The Medicaid Gap The total cost for the therapy sessions, necessary travel, and essential adaptive medical equipment is around $10000. Sadly, this specialized, life-altering care—including the intensive therapy and adaptive devices—is not covered by Medicaid or our insurance. We are facing a devastating choice: let the financial barrier stop us, or reach out to our community for help.
The Funds Will Directly Provide:
1. Specialized Intensive Therapy: Multiple rounds of concentrated therapy sessions focused on unlocking motor skills.
2. Essential Medical Equipment: Adaptive equipment (like specialized mobility aids, harnesses, or safety seating) designed to stabilize Benjamin and improve his comfort, safety, and engagement in everyday activities at home.
This equipment will improve his everyday life. How You Can Make a Difference We are asking you to be part of Benjamin’s team. Every donation, every share, and every word of encouragement brings us closer to securing the future we dream of for him. • Donate: Any amount helps us cover the staggering costs of this specialized care.
• Share: Please share this campaign with your networks. Sharing is one of the most powerful things you can do to help us reach our goal. From the bottom of our hearts, thank you for reading Benjamin's story and considering a gift to give our sweet boy the tools he needs to thrive.
Follow Benjamin's progress here:
Facebook: Benji the unstoppable warrior
With love and gratitude, Sabrina Lowe and Benjamin
A Shot at Unlocking His Potential We refuse to accept the word "impossible." We have found an incredible opportunity that offers Benjamin his best chance yet: a specialized Intensive Therapy Program. This program is not standard physical therapy; it is a high-frequency, rigorous approach designed to rapidly build muscle memory and forge new neural pathways. It is the training that could finally give him the core strength and coordination needed to move closer to critical milestones, like independent walking or assisted standing. This therapy is his shot at gaining the strength we were told he never would. Why We Need Your Help: The Medicaid Gap The total cost for the therapy sessions, necessary travel, and essential adaptive medical equipment is around $10000. Sadly, this specialized, life-altering care—including the intensive therapy and adaptive devices—is not covered by Medicaid or our insurance. We are facing a devastating choice: let the financial barrier stop us, or reach out to our community for help.
The Funds Will Directly Provide:
1. Specialized Intensive Therapy: Multiple rounds of concentrated therapy sessions focused on unlocking motor skills.
2. Essential Medical Equipment: Adaptive equipment (like specialized mobility aids, harnesses, or safety seating) designed to stabilize Benjamin and improve his comfort, safety, and engagement in everyday activities at home.
This equipment will improve his everyday life. How You Can Make a Difference We are asking you to be part of Benjamin’s team. Every donation, every share, and every word of encouragement brings us closer to securing the future we dream of for him. • Donate: Any amount helps us cover the staggering costs of this specialized care.
• Share: Please share this campaign with your networks. Sharing is one of the most powerful things you can do to help us reach our goal. From the bottom of our hearts, thank you for reading Benjamin's story and considering a gift to give our sweet boy the tools he needs to thrive.
Follow Benjamin's progress here:
Facebook: Benji the unstoppable warrior
With love and gratitude, Sabrina Lowe and Benjamin