Ben and Finn’s journey:

Ben and Finn were born at 24 weeks. Ben 1lbs 15oz and Finn 2lbs5oz. The odds were stacked against them. We were actually given the option to end care on Ben and let him pass away but we chose to fight for him. We had the “NICU rollercoaster” experience. We had some great days and some days I wish I could forget but are scared in my mind forever. Finnley spent 122 days in the NICU and Ben 189 days. Since those days the boys have had countless hospital stays and both have had multiple brain surgeries. They were diagnosed with Cerebral Palsy at 1.5 years old. The boys had a major spinal surgery called SDR in November of 2023 at St. Louis Children’s Hospital. This surgery was life changing for the twins. Ben has had 15 surgeries in his 3.5 years and Finn has had 9 surgeries. We are doing everything in our power to give the boys the most independent life, but insurance does not cover all the therapies the boys will need for the future; so most of the costs are out of pocket along with some equipment.