Hi my name is Sammy and me and my Husband are raising money for our son Barrett who was diagnosed with Noonan Syndrome (since birth) and an extremely rare Mitochondria Disease ( 100% confirmed on 11/05/2025) to help us with our medical bills, any medication that he will need and any other possible medical equipment he may need in the future as there is no cure for what Barrett has .
What We’re Raising Funds For
All donations will go directly to helping Barrett and our manage the ever-growing costs of care, including:
- Mitochondrial Cocktails (personalized combination of vitamins - $250 a month/$3000 a year)
- Specialist appointments (genetics, neurology, cardiology, and metabolic care)
- Therapies (physical and occupational)
- Adaptive equipment and mobility aids
- Travel for hospital visits
- Everyday living expenses while the family balances caregiving and work
- Estimated Minimum for Total Costs: $4000 from ICU + $3000 Yearly Mitochondrial Cocktail = $7000
How You Can Help
- Donate — any amount makes a difference.
- Share this page with friends, family, and social networks.
- Send love and encouragement — your words mean more than you know.
From the bottom of our hearts, thank you for standing beside Barrett and our family.
Articles on the information Barrett has:
- Clinical and genetic characteristics of children with COX20-associated mitochondrial disorder: https://bmcmedgenomics.biomedcentral.com/articles/10.1186/s12920-023-01513-y
- National Library of Medicine - cytochrome c oxidase assembly factor COX20: https://www.ncbi.nlm.nih.gov/gene/116228
- Noonan Syndrome: https://medlineplus.gov/genetics/condition/noonan-syndrome/
Additionally, we have agreed to contribute medical information to each genetic condition’s field of research to ensure that other families have hope and a clear pathway on how to approach each circumstance. The road ahead is uncertain, but with your help, we can make it a little easier for Barrett to get the care and support he needs to thrive.
Organizer
