Support Baby Haisley's Medical Journey

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Support Baby Haisley's Medical Journey

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Hello, my name is Brittany. I want to start out by stating I never wanted to go to this level of our journey and make anything like this… we do not ever ask for help unless we desperately need it and even then we hate to… makes us feel awful so we try to do it all on our own. All we do ask for is prayers, good thoughts, or vibes sent her way! But I was kind of talked into making one of these.… also, this is going to be a long story so I apologize in advance, but I sure hope you do read all of it…

Anyway, my name is Brittany (24, just got hired at the DuBois hospital, if I’m being entirely honest…Id so stay home with my babies at least just for a little longer especially with Haisley being only 3 months old and her health but we just definitely can’t afford that, I like working it keeps my mind busy but I would prefer to stay with my babies but again can’t so I’m gonna work my butt off to provide a better future for them!) and my husband Gerome (23, does maintenance at Treasure Lake) have been together for going on 9 years and 4 years married. We have been together since 8th grade. After we graduated together and found a place, we decided we wanted to start trying to have a family… unexpectedly, we were told that they (a specialist) didn’t know what the issue was but didn’t believe we could have children…, but after two long years of lots of tears and appointments, we were blessed with our first daughter, Haven, who is now 2. Our crazy, spunky, beautiful girl. Then after she turned a year, we unexpectedly got blessed again with our 2nd daughter, Haisley, who is 3 months old now. Our sweet, happy, beautiful baby. On the outside, she looks and acts like a completely “normal” baby girl, but on the inside, she has some abnormalities.

Sadly, at our 20-week anatomy scan with Haisley, we got some unexpected scary news…. First, they had told us she had Down syndrome and tried to get us to abort our baby, which our answer was absolutely not. She does not, in fact, have Down syndrome, but if she did, we still would have never had an abortion. She does, in fact, have a rare condition though. She has some unique extra parts which has caused us go to McGee Women's Hospital and Children's Hospital in Pittsburgh 13 times now (she goes multiple times a month at times), 3 ER visits (from a UTI from her kidneys, Covid, and a very high fever), and she just had her first surgery yesterday (1/21/25) at Children's. Haisley has Bilateral renal duplication (a rare condition in which a person has two ureters draining each of their kidneys) with mild hydronephrosis of the left upper and lower pole moiety and a left ureterocele, which she just got surgery on (1/21/25). She is currently on 2 different medications. (She is also getting treated for her Hemangiomas by Children’s in Pittsburgh so we go there for that issue as well and she takes a medication for them and has to get her blood sugar checked when necessary because of the medication)

It takes us just about two hours to get to Children's and almost two hours back, and sometimes we aren’t allowed to take our two-year-old, so we have to find a family member we can trust. With all these appointments, my husband has to request off work and I’m just starting my job, (gotta get my clearances done before I start) so him missing work is hard on money and all of the traveling is hard on gas… we understand everyone has their own problems and difficulties. We are absolutely not looking for any pitty or handouts, we are just asking for anyone and everyone to please keep our little girl in there thoughts as we go through this long, scary, unexpected journey. We are just desperately trying to get caught up on bills so then we could save and move this year because it will be closer to her appointments, my family is that way, better schooling for our girls, better job opportunities for us, cheaper housing, and just to simply have and make the best life possible for our girls. Anything raised would be used for all the trips and possibly her medications. We do not expect anything… but we do appreciate everything!

I try to stay positive and live day by day and just enjoy both of my girls, but I already am an extreme overthinker with severe anxiety… so I’m constantly thinking and asking questions like why? 
Why my daughter? 
Will she live a long happy life?
How?
How did this happen to her? 
What all is this from? (They say it’s not from anything we did or didn’t do but I still overthink about how she didn’t ask to be born and definitely didn’t ask to have any issues at all….so for that I am so sorry baby…) 
Will my baby be okay?! 
It’s been hard to say the least, but I would NEVER change a thing about EITHER of my babies. They are my everything, as long as their dad. They are all the reason I’m here today so all I ask is please, please pray for our perfect baby. She deserves so much!

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Brittany Neiswonger
Organizer
Brookville, PA
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