Support Baby Elianah's Life-Saving Brain Surgery

Help Us Support Baby Elianah Through Life-Saving Brain Surgery

Hi everyone,

We’re reaching out with heavy but hopeful hearts to ask for help for our sweet and strong 14-month-old daughter, Elianah.

Elianah was born with an extremely rare genetic disorder that causes her to have over 24 seizures a day—even in her sleep. Her brain never truly rests. While she is mentally alert and so aware, this constant seizure activity causes what doctors describe as electrical shocks to her brain. It keeps her muscles tense, almost locked, and has severely delayed her ability to speak and move freely—such as walking and holding things.

She just started saying “mom” last month, and she’s said it only a few times. She’s said “hey” twice. Every word is a hard-won milestone, and we celebrate each one.

Now, Elianah is facing her biggest challenge yet: two major brain surgeries on June 9th and June 11th. These surgeries offer the chance to reduce her seizures and give her a better quality of life. She’ll need at least three weeks in the hospital afterward to recover.

Elianah is truly a warrior. She’s the sweetest baby—always smiling, hardly ever crying. She brings joy to everyone she meets. She’s already survived so much, including a terrifying ICU stay in December due to RSV and pneumonia. She had to be placed on a breathing machine and It was terrifying that she could not breathe on her own .That happened just weeks after I watched my dad die to the same illness, which made it even more horrifying and heartbreaking.

I’m a full-time stay-at-home mom because Elianah needs round-the-clock care. She takes multiple medications, has breathing issues, and gets sick easily. We avoid taking her out in public to protect her from getting severely ill. Due her to some of her medical conditions.

We also have five other children at home—four teenagers and a five-year-old. We’re still behind on bills from her previous hospital stays, and now we’re preparing for another long one. My husband will be taking four weeks off (unpaid) to be with us during her surgeries and recovery. Elianah is used to having both of us with her for every hospital stay, and her doctors have said our support is essential for her healing process.

Here’s what your donations will help with:

Travel, gas, and food during her 3-week hospital stay

Bills and household expenses while we’re both out of work

Food and care for our kids at home, including delivery if needed

The reason I’m posting this so late is because I was truly hoping I wouldn’t have to. I don’t like putting our business out there, there are so many people who are judgmental and talk about people and gossip. That's why I was hoping I would not have to do this . I try to handle things on my own. But this time, I know we can’t do it alone. We need help.

If you can donate, share, or even send a prayer, we’d be incredibly grateful. Every bit helps us support Elianah through this critical time. Thank you from the bottom of our hearts for standing with our family.

With love,

From our family to yours