Support Ava Loulou’s Off Island Medical Treatment

Hafa Adai Family and Friends,

Our beautiful 7 year old Ava Loulou is battling a rare lung disease and will be needing her 2nd round of treatment off island, after many years of tests, worries and questions, Ava has been diagnosed with a rare condition called Idiopathic Pulmonary Hemosiderosis (IPH). This is an extremely rare condition mostly affecting children and young adults. It is characterized by repeat bleeding in the lungs which leads to iron deposits pulmonary fibrosis. Ava has been hospitalized for an extended amount of time and medical expenses are mounting. Please help our wonderful family if you’re able, and keep them in your thoughts and prayers as they navigate through this overwhelming time. Thank you for your kindness and generosity. We will continue to update you on how your support is making a difference.

Love, Jericha and Edward