Archie is my sweet great nephew, just 2 years old, and recently diagnosed with LMNA-related congenital muscular dystrophy. This is an extremely rare genetic condition—less than 1 in a million—that affects his muscle strength and endurance. After almost a year of questions, concerns, prayers, and countless doctor appointments, Archie’s family finally received this diagnosis. Archie has a healthy twin sister, a 4-year-old big brother, and a new baby sister. The journey ahead will require significant resources, time, and love to help Archie live the best and longest life possible.

There is no cure for Archie’s condition, and treatment options are limited. His family is committed to staying positive and focused on giving Archie the fullest life possible. The funds raised will help cover the costs of his physical therapy, cardiology monitoring, and other essential medical treatments. It will also support the purchase of other equipment like a wheelchair, if needed, and in the more immediate future, a service dog, who can always be by Archie's side, and help his family provide the care and support he needs at home. Every donation will make a real difference in giving Archie the fullest life possible.

Archie’s intelligence, personality, joy, and light remain completely intact. He is still the happy, thoughtful, sensitive, and loving little boy his family knows and cherishes—just navigating the world in a body that works a little differently. His family is grateful for the love, prayers, and support from their community. Your generosity will help Archie and his family navigate this journey and give him every opportunity to thrive. Thank you for your kindness and support.