My name is Alexandra Steinicke and I have ALS. Some might call this horrific disease Lou Gehrig's disease. This disease step by step in rapid succession takes out the function of nerves in the body. It started with me with my left drop foot. Followed by the right drop foot. Which leads to tripping over my own feet. Not I walk with a walker to avoid falls. In addition, my singing voice is gone. I am dropping things with my hands. This will eventually lead to not being able to use my hands and legs. In late stages, this disease kills most people with ALS by taking out our ability to swallow and breathe independently and the complication relates to using support to breathe and swallow.

This is a profoundly expensive disease. The only treatments that have had any success at reversal are natural. I have a genetic mutation called C9orf72, which is creating proteins in my brain that are destroying otherwise healthy brain cells.

The real needs:

ALS, or amyotrophic lateral sclerosis, is a devastating neurodegenerative disease that affects thousands of individuals each year. This progressive disorder leads to the degeneration of motor neurons in the brain and spinal cord, ultimately resulting in muscle weakness, paralysis, and eventually death. As researchers continue to search for a cure for ALS.

By increasing public awareness about ALS, we can help educate others about the impact of this disease on individuals and their families. Additionally, raising awareness can help dispel myths and misconceptions about ALS, ultimately leading to a more informed and compassionate society.

Please contribute to help make the remaining days, months, or years of Alexandra’s life as easy and enjoyable as they can be, given this difficult health challenge. Our gratitude is more immense than we could put in words.