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Support baby Albie's days ahead with Lissencephaly

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Support Albie's Precious life with Lissencephaly

Baby Albie was sadly diagnosed with a rare, terminal brain condition called Lissencephaly, shortly after his arrival into the world. This was a result of contracting cytomegalovirus (CMV) in utero, both of which weren’t discovered until after Albie was born.

Lissencephaly will severely shorten Albie’s life and affect the development of his brain, which leads to many complications developmentally, including cerebral palsy/distress. Albie is deaf in his left ear which requires a hearing aid, as well as requiring round-the-clock care including tube feeds and regular medications. His condition is progressive so his needs will only continue to increase.

This diagnosis has been a devastating blow to Albie’s entire family especially to his loving parents Hannah and Dave, and sibling Beatrix; but we are determined to provide him and his family with all the love and support he needs for this precious time that we have with him. However the road ahead is filled with challenges, both emotionally and financially.

How You Can Help

We are reaching out to kind hearts and generous individuals to help us raise funds. Every donation, no matter how small, will be crucial in providing support to Hannah and Dave to assist in alleviating the financial strain, allowing them to access the care, therapy, equipment and medications Albie needs for as long as possible.

  • Donate: click the donate button and give what you can. Every little bit helps.

  • Share: spread the word about Albie’s story. Sharing this campaign on your social media platforms or with friends & family can make a huge difference. LINK TO SOCIAL SHARING IMAGES & COPY

  • Send love: if you are unable to contribute financially; your thoughts and messages of support are equally valuable to us


Our Promise to You

We vow to maintain transparency and keep all our supporters updated on Albie's progress. We believe in the power of community and kindness, and we are hopeful that with your support we can provide Albie with the best possible chance at a comfortable life.

From the bottom of our hearts, thank you for taking the time to read about our little fighter. Let's come together to give Albie, Hannah, Dave and Beatrix the love and support they need during this challenging time.

With heartfelt thanks



Donate

Donations 

  • TJ CANN
    • $100 
    • 13 hrs
  • sharon kelly
    • $100 
    • 4 d
  • cameron rains
    • $100 
    • 4 d
  • Annette Hayter
    • $50 
    • 4 d
  • Peter Flynn
    • $20 
    • 8 d
Donate

Fundraising team (6)

Kate Hurst
Organizer
Macquarie Pass NSW
Hannah Croker
Beneficiary
Amanda Clark
Team member
Rosalie Vale
Team member
Bee Smith
Team member
Wendy Murray
Team member

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