Support Aiden's Journey to Fight DMD

As most of you know, our boys both have a type of muscular dystrophy called Duchenne muscular dystrophy (DMD).

Last June, a gene therapy treatment called Elevidys was approved by the FDA for DMD patients age 4 and over. This was huge for the DMD community because up until pretty recently, there weren't many options for treatment. Elevidys has been shown to improve muscle function and delay the progression of the disease.

We have been in the process of getting this treatment for Aiden for the last 10 months, with insurance denials, appeals, and several months stuck waiting for a contract to be signed before we could move forward.

We finally found out about a week ago that the contract was signed and we could move forward with the treatment. On April 23rd, Aiden will be receiving an infusion of Elevidys.

Unfortunately, there are some possible serious side effects that could occur. Because of this, Aiden's doctor wants us to stay close to the hospital in Little Rock, Arkansas, for 3 months following the infusion. He will have to have weekly labs done during this time to watch out for any complications. It wouldn't be safe for him to be 3 hours away from his doctor if anything were to happen.

At first, we thought we'd be traveling back and forth each week to get the labs done, so we definitely were not prepared to have to be away from home for 3 whole months. Colton is a fireman/paramedic and has a painting business on the side and will be unable to work during his peak season. We have to maintain our bills in Louisiana and pay for short-term housing in Little Rock. We are humbly asking for your help and pray that God blesses everyone who does help.

We covet your prayers as well, thank you all!