Support Abigail's Fight Against FDXR

Abigail is a gentle and loving little girl who has a devastating progressive neurodegenerative disease, called FDXR. FDXR is a primary mitochondrial disease and is not only progressive, but extremely painful. Abigail has significant vision and hearing loss from optic atrophy and auditory neuropathy and has recently stopped speaking. She has peripheral neuropathy that is at times, excruciatingly painful, and she is no longer able to walk or crawl. Abigail has an infectious and bright personality, a magnetic smile that draws you in. Despite the obstacles she must overcome, she greets each day with enthusiasm and is the hardest working 8 year old! Currently there is no cure for FDXR, but we are working closely with very dedicated physicians and researchers to change that for Abigail and the other children who suffer from FDXR, in honor of those children whose lives have been taken too soon. We would love to give Abigail experiences, and there are durable medical equipment needs that we have struggled to get through her two insurances. We appreciate any kindness you feel compelled to bestow upon her and promise to pay it forward. You can follow Abigail’s story on Instagram @fdxr_mutation