Abigail is a gentle and loving little girl who has a devastating progressive neurodegenerative disease, called FDXR. Abigail has been quite ill and hospitalized for the last two weeks. There have been multiple complications during this hospitalization. Mom has been at the bedside and out of work (with insufficient PTO) for the duration of her stay, and for the foreseeable future. FDXR is a primary mitochondrial disease and is not only progressive, but extremely painful. Abigail has an infectious and bright personality, a magnetic smile that draws you in. Despite the obstacles she must overcome, she greets each day with enthusiasm and is the hardest working 9 year old! Currently there is no cure for FDXR, but we are working closely with very dedicated physicians and researchers to change that for Abigail and the other children who suffer from FDXR, in honor of those children whose lives have been taken too soon. We appreciate any kindness you feel compelled to bestow upon her and promise to pay it forward. You can follow Abigail’s story on Instagram @fdxr_mutation