For the past year and a half I have experienced increasing pain levels and difficulty moving around. Last month I FINALLY got diagnosed with POTS and fibromyalgia in addition to the hEDS that was diagnosed last year. These conditions influenced my decision to leave NYC and have still significantly limit my ability to interact with friends and family despite living closer which has been rather isolating. Many of you know I have relied on the use of a cane for the last year, but I am still limited as to the distances I can travel and how long I can stay out.

I am hoping to raise money to pay for a wheelchair so I can start doing more of the things I love and miss. Even though I now live near so many great museums, I haven’t been able to visit yet because they either don’t have scooters available or they change for their use.

Any funds that are not used for the purchase of my wheelchair will be donated to the POTS Research Fund of Dysautonomia International. You can view a list of the research they have funded here: https://www.dysautonomiainternational.org/page.php?ID=289.

Thank you for reading my story regardless of capacity to donate! I am grateful for the chance to share and have the opportunity to spread awareness of how these conditions impact daily life.