I am a disabled 55-year-old male trying to give back to my community. I personally have struggled with a rare, inherited blood disorder called Bernard-Soulier Syndrome my whole life and have Crohn's Disease as well. I have had multiple surgeries and feet of my intestines removed and have spent a third of my life in hospitals, almost dying several times because of internal bleeding. I can't work at a non-remote location or travel to work anymore. So, I am trying to start a non-profit for people with my rare blood disorder. There is no medication for it and limited to no studies on it because it is rare, and the pharmaceutical companies have no interest in funding research if there's no profit in it for them. I have almost died (I actually flat-lined twice) from this disease or combination of diseases several times within the last decade.

It is my goal to procure funding to help start a nonprofit fundraising organization so people with Bernard-Soulier and combined chronic illnesses can hopefully have some type of medication or other medical resources to keep them from being put in a disabled condition.

Since 2020, I have lost everything due to these diseases. Everything. I'm not bitter; I'm more resolute in making a difference here before I'm gone and helping those who may follow in my footsteps. Please help me raise the funds to get a non-profit business off the ground and create research and possible medicated help for people afflicted with chronic diseases affiliated with Bernard-Soulier Syndrome.

Thank you for helping me help make a difference.