Some of you know I went through some medical issues in 2019 and mind had a rough time ever since..Some of you know I had my lung removed and had some major life changes around this time. What many don't know is I had a life changing cancer diagnosis and haven't been the same since. I'm going to try and give a brief but detailed highlight reel of the last 6 years to paint a picture.

In 2018 I had a cough that lasted over a year and a half and was continually misdiagnosed by multiple doctors and written off as silent reflux. It wasnt until the end of 2018 that I got extremely sick and had both pneumonia and the flu at the same time and wound up in the ER where they were about to give me meds and let me go but wanted me to walk the floor with the O2 reader first because at one point during visit I believe my oxygen dipped to 94ish maybe? It's hard to remember that far back but either way it was low enough to have concern but still.decent enough to give me one more chance to check it out if that makes any sense. Either way I don't pass the little test and ended up getting admitted and taken by ambulance from the little stand alone ER in Lake Mary to Advent Health in Altamonte. There I would spend what would be 11 of the scariest most frustrating days of my life and finding out that my left lung was actually collapsed but they kept me through Thanksgiving but let me out before Christmas which was my main concern but we still didn't know why. They scheduled me for a broncosopy to go in and see what was going on. Come to find out, I had a fairly large mass on the lower left lobe which was what caused my lung to collapse. They took several biopsies and turns out it was cancerous and I was diagnosed with Adenoid Cystic Carcinoma of the lung by December 2018. Being that it was a salivary gland cancer and only present in my lung they continued to run tests and scans and MRI'S of my head gave and neck but only saw it in lower left lobe. My Pulmonologist explained this particularly rare type of cancer did not respond to chemo that nest course of action was surgical intervention followed by radiation if needed. When I met with the thoracic surgeon, still spinning and not believing this news she began to explain his goal was to go in the least invasive way, roboticly and remove lower left lobe however he went on to explain that if he did not like what he saw, he could have to potentially go in break my ribs and cut me open and remove the entire lung, turning a simple minimaly invasive surgery with 4 small holes in my abdomen with a 2-3 week recovery time into a major surgery where the have to break my ribs and cut me open from under my breast to aroumd my back with a potential 2 month recovery time l. Needless to say that was a lot to take in but was what needed to be done. So they scheduled my surgery for January 2nd 2019. I was obviously in shock and quite scared as I had never even had surgery before but , again it's what needed to be done. I wake up from surgery to find out the surgeon did not like what he saw , so he had to open me up where he performed the full pneumonectomy and removed the whole thing as far up as he could without damaging my esophagus. He also performed a lumpectomy, removing approx 10-12 lymph nodes from surrounding area to send off for biopsy. The biopsy results came back showing that o er half the sampled lymph nodes were cancerous leading him to refer me to a radiation oncologist to get me scheduled for 32 treatments of radiation to my chest starting in Mar 2019. I was about 2 weeks post op when I developed an infection and had to spend another week in the hospital and after my 45 days off work (longest time off work since I started working full time at the age of 15 ). I was able to return to work and settle back in for a week or two before starting my radiation schedule. I was ordered 32 treatments that I would do everyday Mon-Fri on my lunch break. This wasn't bad at first but about halfway through it began to take its toll and some days I was too tired and nauseous to return to work after and they were understanding about it. But I only have in a couple times a week because who can afford that after taking 45 days off right? So my first post op PET scan showed no evidence of disease so we were golden. We did it. I was told with this particular type of cancer , that traveled through the nerves, there's really no "remission" but N.E.D. was best we could hope for and that usually by the time it was visible on scans it was usually too late to save whichever organ it was found in so I was getting scans every 6 months so we could catch any reoccurrence as quickly as possible. I won't get too far into it but radiation did a number on me starting with frying my brain and messing with my cognitive skills and memory pretty bad. I ended up getting kinda demoted at work due to making so me fairly large mistakes costing the company I worked for.l ober 10 years enough money to actually demote me. They felt bad and gave me a raise but either way it was another hard pill to swallow but there was nothing I could do about it. There were many obstacles and health issues I had to learn to deal with from both the surgery and the radiation effecting me both physically and mentally but I was young, tough and resilient and di not let it get to me too bad. I didn't have time to. In the almost 6 years since the surgery, each year a new diagnosis/ issue would pop up that stemmed from the radiation that I was told was going to possibly buy me 10 more years of life. Each one progressively being more serious than the prior years. I'm going to FFW through the highlights because there's so much in between and I'm not trying to write a a novel.

On my first year anniversary radiation gave to me...lol Sorry I have to try n make light of some of this so.i.domt completely lose my shit ;)

2020: ULCERS IN ESOPHOGUS Multiple visits to ER thinking I was having heart attack because of chest pains, not being able to swallow much, pills getting stuck in throat has to have esophagus dilated due to radiation damage

2021: Began Monthly iron infusions due to sever anemia because my body would no longer absorb iron. Severe muscle spasms in back began.

2022: Leaky valves in heart was told surgery was definitely in my future but they would not operate at that time because I was too risky and too young and it was going to only get worse and definitely would have to be done again in the future.

2023: Hiatal Hernia - if you know you know. Fucking ouch..Who knew your stomach could come through your diaphragm and cause back pain and heart attack pain if you ate to much or didn't chew your food enough? OUCH They wanted to operate but my gastroenterologist said I'm too high risk and risks out way benefits at this point change diet n habits to learn to live with it

2024: Paralyzed vocal cord. Surgery didn't work. I now sound like Marge Simpson couldn't scream if life depended on it. Super frustrating and now more exhausting to talk in correlation with the leaky valves and only one lung.

2025: This year was a doozy to say the least. Went in with chest pains feeling weak and sick unable.to get out of bed for weeks. Hemoglobin was 7 is lowest they let you get before you require a transfusion. I needed 3 units. All of my iron reserves in my bone marrow were depleted and not producing anymore. Trying to find a microscopic bleed somewhere running lots of tests.

1. Mass in Duodenum- possibly source of bleeding, fairly large and needs to be removed before it obstructs the passage way from my stomach to my colon.

2. Coronary Artery Disease - Discovered during pre surgery workup. Now Gastroenterologists won't operate on mass because it's too risky.

3. Heart Failure- Now mass can't be removed until I have open heart surgery because I have 80% blockage. After the heart cath they see it's too risky but cannot put stints in either due to the hardening of the vessel walls , due to radiation.

4. Gastric Volvulus - my stomach literally was in my chest and tied in knots causing me to vomit my own feces and lie I'm floor in pain crying for hours not knowing this was life threatening condition that caused sepsis. Second time I almost died in a 2 weeks. Had to have emergency surgery and a feeding tube to anchor stomach down they said leave in 4-6 weeks. I was home 2 days before it dislodged from me coughing causing my peg tube/hole.im stomach to spew all my stomach contents acids and all over and freak me the fuck out. Back to hospital. They yanked it and I didn't eat or drink for 10 days trying to let it heal bc going back in is so risky.

5. Leasions spotted on liver possibly Mets

6. Spots on my only lung - possibly Mets

7. Trigeminal Neuralgia- more likely related to my TMJ than the radiation but it sucks and hurts.

Im sure I'm missing something here but I'm now on 9 new medications, no car, no job and no insurance about to lose mind bc I can't afford to pay for follow up visits let alone afford to Uber to them and I have $2k in prescriptions I need to pick up. For the better part of July and August I have been hospitalized. I was also told I had to move 3 days into my 11 day stay in July. Panic mode. Nowhere to go. No way to go. No money to go. Somebody shoot me? Can't give up now I have been through too much..more questions than answers so many new diagnosis and prescriptions. Holy crap WTH am I going to do? Where am I going to live? Am I going to live? Being transferred back and forth like a ping pong ball between hospitals, nobody wants to operate and I was told.bunseveral doctors I needed to just do research, find good cardiologist team and thoracic surgeon and go into ER wherever they were and get them to admit me. My mind is blown at this point. I cannot believe what I'm hearing. I have super serious conditions that need to be fixed but nobody willing to fix them because I'm too high risk. WTH do I do? Meanwhile stuck in hospital while.inmeed to be moving my stuff but where do I move it to? How do I move it?

This is what brings me here. I need help. Like lots of it. I'm still in hospital, my stuff is in a house that is up for sale and I can't get to it and have nowhere to put it even if I could get to it. Im in shock still, and my BF of only about 6 months who saved my life by forcing me to go to hospital while I was laying there dying not once but twice was busting his ass by going back to work on a leg that was broken in 3 places and needed to be operated on because he knows I cannot be homeless, I will die. I have too many issues going on. So far he has kept us afloat but even 2 incomes couldn't afford all of this. I'm really freaking out over here. So we do some research and reach out and find some good doctors in another state but how do we get there ? Where will we live? How TF did we get here? Wth are we going to do?

We still don't know how we are to do it but we know we need to. I have found a few organizations that are helping me look for resources but time is of the essence. I need.to get my stuff moved before I Iose it. Need storage, moving truck then if we can't come up with enough money me my BF n the cat and snake are gonna be hitchhiking and just moving into the hospital and hoping for the best. I'm trying to look at one thing at. Time but it's all happening at once and I'm starting to panic. My BF has the weight of the world on his shoulders having to not only support my financially, physically and mentally but He's got a work so he can pay for my medical insurance and scripts I tily disability goes through. It costs a fortune to Uber to n from work and hospital and he feels guilty leaving me here alone to go to work but has been here for me whenever not working but he's literally working just to pay my phone bill and insurance and get to and from work n hospital. Forget getting ahead, how TF are we going to survive? He's out there killing himself for me and I can't do shit but sit here in hospital. We need help. More so now than ever. How much help we get will dictate what we are able to do. So I know everyone going through it and I always seem to be going through something and hate asking but dammit IDK what else to do. Besides filing for disability and Medicaid I have to swallow my pride and come here and ask for help. Every penny counts and will be appreciated. Even if we can't get to a bigger city with a better hospital, I'd be grateful to be able to afford my scripts and transportation to appointments but even that is pointless if we have nowhere to go in I get released from hospital finally. Even if you cannot help financially please help share this. I'm grateful for any help we receive. At this point we have to just put it in God's hands and have faith everything will work out because my body is already trying to kill itself I can't be stressing myself into a heart attack on top of it all.

If you made it this far through my novel thank you for taking the time ♥️ All prayers and good vibes welcome!