Most of you know the story of our 3 year old heart warrior, Myles! But for those who don't, his story is one of courage beyond his years. We finally got a date for his 3rd open heart surgery. May 6th, 2026. We will leave town on May 4th and head to New Orleans, 5 hours from home and we will spend approximately 1 month in the cardiac ICU at Manning Family Children's Hospital.

Myles was born with a rare and life threatening single ventricle heart condition called Hypoplastic Left Heart Syndrome. Essentially meaning he was born with only half of a heart. He has spent a large portion of his life in the hospital/ICU for many different surgeries, procedures and illnesses. This will be his 3rd open heart surgery, and it will be the hardest one yet for him and for our family. This surgery, called the Fontan, will involve removing the inferior vena cava from the heart and connecting it to the pulmonary artery. This will finish the 3 surgery process to completely reroute the plumbing in his cardiopulmonary system, so that his body can receive better oxygen. Myles also has a leaky tricuspid valve, and will likely undergo a valve replacement at the same time. This is an entirely separate heart surgery that will be performed at the same time. He is expected to be in surgery between 8 and 10 hours that day.

Any donations will go directly to the costs associated with this surgery. Travel, hotel stays, food, parking costs, and bills that continue to pile up at home while we are out of work for an extended period of time.

We are deeply grateful for all of the support that has been shown to Myles on his journey so far, and we are hopeful and praying that this will be his last open heart surgery. Please consider supporting Myles as he bravely fight Critical Congenital Heart Disease. We love you all so much! ❤️

#heartwarrior #heartmom #heartdad #chdawareness #HLHS