Our little man Tyler was a happy heathy little boy just starting to figure out how to keep his mommy and daddy on their toes. Finding ways to get around the house and really starting to explore his world. He hadn't figured out how to crawl or walk, but was the fastest "log roller in the west". Everything was wonderful in the Sauers' household until about a week after his first birthday.
The whole family got a minor cold, nothing out of the ordinary. Mom and dad both had runny noses, and Tyler was about the same, other than he had a slight fever for about 24 hours. Everything seemed to be back to normal, but mom and dad noticed that Tyler didn't seem as strong as he was on his birthday. Tyler quickly started regressing in all his development, and like any parents would, mom and dad started to panic a little. "Why is our son changing so quickly"?
Over the course of six weeks Tyler went from a strong healthy 12 month old bouncing baby boy to a floppy, fussy, 3-4 month old. During this time the family drove all over Wyoming seeing different specialists. All the while their wonderful doctor back home was contacting clinics all over the west trying to figure out what would cause such a regression. That is when the family was referred to Denver Children's Hospital. They were rushed there where teams of doctors listened to the story then poked and prodded this little superman of a baby.
Then the dreaded MRI..... That is when our little super hero Tyler was diagnosed with a rare mitochondrial disease called Leigh's Syndrome. The family was devastated, but through all the testing Tyler continued to win the hearts of anyone that got a chance to see his wonderful smile. Test after test after test Tyler would just smile away at the doctors and nurses. That is when we knew Tyler was special. He was so strong and brave. He couldn't talk to us anymore, he couldn't wave at us any more but he could light up a room with his smile and eyes!
We need to do two things to make sure Tyler can be raised in an extremely healthy environment. Any sickness will be devastating to his little body. His parents are planning to donate their current house to habitat for humanity inorder to build a new house that will meet all of Tyler's needs. The new house needs to meet the same health standards as a hospital with air filters and air purifiers. Tyler may be restricted to a wheel chair at some point so the house will be designed to meet that need. There is also an unknown amount of travel back and forth to Denver (7 hour drive) for an unknown amount of tests and therapies that may help. Mom and dad may need to be genetically tested as well to determine if any future children would be affected by this same disease. The second part that we need from you is to pay all this love and support forward!!! We as a family are going to lead the way to bring a more healthy diet and awareness of what our bodies need to fight off illness and sickness. Any support that goes above and beyond Tyler's needs will go to support other families in need and help support foundations that are for the kids....
- Susan Bauman
- Union Congregational Church
- Jennifer McMahan