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Superhero #2: Carter's CDH Battle
0% complete
$16,442 raised of $30K
116 donations
At Rachalle's 20 week ultrasound, it was discovered that our baby boy had a condition known as CPAM, cysts in one lung. Everything we learned showed that it did not appear to be life threatening, and that a surgery would take place sometime during the baby's first year in life that was not life threatening and he would go on to lead a normal life.
At Rachalle's 28 week ultrasound, that diagnosis had changed to CDH, Congenital Diaphragmatic Hernia. The baby has a hole in his diaphragm and his stomach is now in his chest area putting pressure on his lungs and heart. This is a life threatening diagnosis.
This will require surgery immediately after birth, and a long stay in the intensive care unit. National survival rates are about 60%.
Upon doing our research, we found a doctor and team in St. Petersburg Florida that is reporting a 90% chance of survival with this condition. They have a dedicated team and unit just for CDH babies.
Much like with Luke, we want to give our children the very best chance at a healthy normal life, so we have decided to relocate there for the birth of the baby.
As most of you know, for the past 2 years we have been battling neuroblastoma cancer with Luke. Rachalle has been unable to work since this diagnosis and I have been the sole provider. Rachalle was planning to return to work this fall teaching, but with the condition of the baby, this will not be possible.
We are so grateful to everyone who donated for Luke, and are simply stunned we need to ask again, as it is quite humbling to do so. We wrestled with this decision for the last week, but looking at Luke's ongoing (hopefully nearing the end) situation, more travel, after crunching the numbers, we just simply need help. I cannot thank you all enough. We are incredibly humbled to have to ask.
At Rachalle's 28 week ultrasound, that diagnosis had changed to CDH, Congenital Diaphragmatic Hernia. The baby has a hole in his diaphragm and his stomach is now in his chest area putting pressure on his lungs and heart. This is a life threatening diagnosis.
This will require surgery immediately after birth, and a long stay in the intensive care unit. National survival rates are about 60%.
Upon doing our research, we found a doctor and team in St. Petersburg Florida that is reporting a 90% chance of survival with this condition. They have a dedicated team and unit just for CDH babies.
Much like with Luke, we want to give our children the very best chance at a healthy normal life, so we have decided to relocate there for the birth of the baby.
As most of you know, for the past 2 years we have been battling neuroblastoma cancer with Luke. Rachalle has been unable to work since this diagnosis and I have been the sole provider. Rachalle was planning to return to work this fall teaching, but with the condition of the baby, this will not be possible.
We are so grateful to everyone who donated for Luke, and are simply stunned we need to ask again, as it is quite humbling to do so. We wrestled with this decision for the last week, but looking at Luke's ongoing (hopefully nearing the end) situation, more travel, after crunching the numbers, we just simply need help. I cannot thank you all enough. We are incredibly humbled to have to ask.
