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UPDATE:Caleb has been doing very well since having his tracheostomy. He was APPROVED for medi-cal for 2021 since the surgery but the medical bills keep rolling in from previous admissions. Today’s notice was unexpected when I thought we were finally caught up. Our family has been very grateful for all the love and generosity. I do NOT like asking for help but any support is appreciated.
As most know Caleb has WOREE Syndrome that causes seizures, respiratory issues, hypotonia, global developmental delay....we are still in the hospital entering the second month (this is our 20th admission). He had a tracheostomy surgery last week which has benefited him so much already. He’s is finally very comfortable! We would like to get him a firefly GoTo seat that will help him sit up and a second car seat (some wonderful people helped with the first) that fits him specifically. Anything else goes straight to medical bills. Thank you as always for the love and support.
As most know Caleb has WOREE Syndrome that causes seizures, respiratory issues, hypotonia, global developmental delay....we are still in the hospital entering the second month (this is our 20th admission). He had a tracheostomy surgery last week which has benefited him so much already. He’s is finally very comfortable! We would like to get him a firefly GoTo seat that will help him sit up and a second car seat (some wonderful people helped with the first) that fits him specifically. Anything else goes straight to medical bills. Thank you as always for the love and support.

