Ocyus is a passionate six-year-old boy with Stickler Syndrome, a genetic malfunction in the connective tissue that connects bones, eyes, and ears. This disorder is associated with problems of vision, hearing, bones, joints and facial structures.
Ocyus was born with a cleft palate, receding jaw, fluid in his head, and a hole in his heart. He has undergone multiple procedures already, including open heart surgery.
Despite everything he’s faced, Ocyus is a happy kid and doesn’t let much get him down. He wants to enjoy doing all the normal "kid stuff" that other children do.
The money raised, through the Thunder Pageant, will help with Ocyus' ongoing medical expenses, travel to Doernbecher’s Hospital, and everyday living costs… especially when his dad or mom must take time away from work after his surgeries.
Ocyus was born with a cleft palate, receding jaw, fluid in his head, and a hole in his heart. He has undergone multiple procedures already, including open heart surgery.
Despite everything he’s faced, Ocyus is a happy kid and doesn’t let much get him down. He wants to enjoy doing all the normal "kid stuff" that other children do.
The money raised, through the Thunder Pageant, will help with Ocyus' ongoing medical expenses, travel to Doernbecher’s Hospital, and everyday living costs… especially when his dad or mom must take time away from work after his surgeries.
Organizador y beneficiario
Chris Maskill
Beneficiario