Summer lost her battle at 12.38pm on Friday 30 December 2016.  We want to help raise money for the funeral costs to assist Brittany and her family at this very sad time.

Summer Jane Marie Eadie was a true warrior princess. She was the brightest star and the love of her mother Brittany's life and the precious granddaughter of Sue and David.  She touched everyone she met with her happy and loving nature.  She was a child that had vast medical issues but all the love in the world from her family.

My cousin Tammy and myself (Sandy) knew that there was nothing that we could say to make things better so we thought that the only way we could help out would be financially. We are cousins to Sue and Brittany.

This is Summer's story from conception as told by her devoted mum, Brittany:

"My name is Brittany and my partners name is Corey and this is the story of our warrior Summer.

I was 16 when my pregnancy was confirmed and gave birth at 16 . 17 now and Corey is 21. At Summers 18 week ultrasound, the sonographer detected heart anomalies. Our world got a little crazy from that day forward. The sonographers and cardiologists at Mater Maternal Fetal Medicine informed us that Summer had what was known as "Right Atrial Isomerism" a very rare and complex congenital heart defect.  She also has a Hiatial Hernia where 50% of her stomach is pushed up into her oesphagus and Summer has no spleen as well.

(Asplenia) which means her infection control is always in doubt. Her cardiologist feels that her left ventricle and left atrium are really her right and vice versa. The roller coaster ride had begun. We had some people say that she would be lucky to make it out of the womb alive.

Finally her day had come on the 28th November 2012 baby Summer came into the world.  

Day one of survival had begun. From day dot her NG tube was inserted and all her food and medicine was given through it.  On day 19 of her life she went in for open heart surgery with the plan on getting her PDA stented, but ended up coming out with a BT shunt placed to secure her pulmonary circulation.

Post op Summer was diagnosed with SVT (supraventricular tachycardia) extremely fast heart rate. She spent the first 3 weeks in NICU and was then transferred over to PICU in the childrens hospital for another 3 weeks, hooked up to all sorts of medical machinery.  After approximately 10 weeks Summer was able to come home on a variety of medication. We had appointments with the cardiology clinic every 3 weeks.

In May of 2013 Summer went in for a cardiac catheter. Unfortunately the arteries in her groin could not be accessed and they had to go in via the great arteries in each side of her neck, as they were removing the catheter lines she went into cardiac arrest and the surgeon had to perform some assistance via CPR to keep the blood pumping around her small fragile body.

So we spent another 6 days in PICU and 4 days in the heart ward.  Early in May we were told by her cardiologist that unfortunately there was nothing more medically that could be done for Summer as her heart is further advanced in heart disease than they had thought.

We met with the palliative care team and discussed all issues regarding that phase of her life that was apparently weeks/months away from in medical terms. The day she should medically speaking never be seeing. The day we thought we would never get to celebrate her first birthday. Summer is still fed via a NG tube every 3 hrs and has developed oral aversion.

Medical Summary of Summers Diagnosis

Atrial Septal Defect
Ventricle Septal Defect
Pulmonary Atresia
SVT supraventricular tachycardia
Total Anomalous Pulmonary Venous Return
Hiatial Hernia
Midline Liver
Asplenia
Interupted Inferior Vena Cava


Summer Jane's Facebook page:
https://www.facebook.com/groups/488878004512549/ 

We appreciate anything that you can give to help us with our quest.

May you rest peacefully and in the words of your loving mum, "I love you to the moon and back one million times"