Born March 30th, 2017 to my brother in law and sister in law, Robbie and Mindy Mitchell, two of the most loving and humble people I know. Let me give you a brief background on their story and the Miracle of baby Milo. Robbie and Mindy have struggled for the past 2 1/2 years to start a family of their own. They had endured many costly rounds of fertility treatments with no success and a lot of heartache. They both weren't sure the way their family would come to be, but trusted that the Lord would provide the way for them. They received a call in January that would change their lives forever, the opportunity to adopt a baby boy and without hesitation they knew this baby was an awnser to their prayers. With so very little time to get everything prepared to bring home their baby, Robbie and Mindy immediately set to work planning and paying for the lawyers fees, home studies, parenting classes, etc in order to make their family complete. Never once did they stop and think they couldn't make this happen because of money, they would go on to use their savings and take on some debt because no price was to great for their miracle baby so off to California they went!
A day after Milo was born the nurses came in to give him a standard newborn hearing test in which he failed and Robbie and Mindy were asked to bring him back in 3 weeks to retest. When they went for his appointment they confirmed that baby Milo had profound/significant (complete) hearing loss which lead to his diagnoses of Congenital CMV Cytomegalovirus. CMV is actually pretty common and can be found in most people presenting itself with symptoms of a common cold when infected or no real symptoms at all, but is know to be the most dangerous when contracted in the mothers womb which is how baby Milo was infected. The virus can have many complications in a newborn baby varying in severity including: hearing loss, blindness, intellectual disabilities, seizures, weakness or problems using muscles are just to name a few. While Milo seems to be VERY healthy otherwise he still has to go through very extensive testing through the Children's Hospital in Hawaii under the care of his infectious disease Dr. Milo has already had several rounds of testing done which included several blood draws, a spinal tap, and a brain scan to see how much of the virus can be detected in his system as well as to see how his brain is developing. So far all the test results have come back very good with no more surprises. Needless to say all of these tests are done in the hospital and are very expensive even with insurance. Robbie and Mindy have also taken Milo to see an audiologist to be fitted for hearing aids which he is required to wear for 6 months before he can even be considered a candidate for cochlear implants. The total cost for the hearing aids is $3000 which the insurance WILL NOT cover any of the cost because they say they are not medically necessary!! CRAZY!! At 9 months old baby Milo will undergo an MRI and ABR to confirm the hearing loss is as significant as initially thought so they can set up a surgery date for his implants on or as close to his first birthday as possible. Robbie and Mindy were told by their Dr's that the Cochlear implants will cost $80,000 but will be partially covered by insurance not knowing to what extent until after the claim is filed. For the time being Robbie and Mindy have enrolled in sign languge classes which will begin in July as well as starting baby Milo in speech therapy to help him learn to communicate. All of these things are additional expenses beyond what the insurance deems "medically necessary" and will be paid directly from Robbie and Mindy.
Testing with a Poke but I Took it Like a Champ!
Mommy Holding me Tight for More Testing
Daddy's got me Covered for this One :)
Another Poke but Mommy knew just what I Needed
With all that being said, I had the opportunity to spend some time with Milo and Robbie and Mindy and I can say without a doubt that baby Milo is the luckiest baby in the world to have the parents he does. Robbie and Mindy would never ask for anything other then your prayers for Milo's continued health and strength throughout this process. After sharing Robbie and Mindy's story with many people I have had so many asking how they could help. I decided I wanted to try and help lighten their load financially through this Go Fund Me page. If you ask Robbie and Mindy who the lucky ones are, they would say without hesitation, we are. Milo has blessed their lives in so many ways, and they continue to see those blessings in their lives everyday. They are amazing people, that are on an amazing journey and I know they wouldn't have it any other way!! I Love This Sweet Little Family.
#Miracles for Milo
- Cinda Middleton
- Shelie Doman
- Sharee Billmam
Organizer and beneficiary
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