Sturge Weber UK

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£616 raised of 

Sturge Weber UK

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Running the 2026 Manchester Marathon for Sturge Weber UK


In 2024, I ran a half marathon for Sturge Weber UK.
 
This time, I’m going further. On April 19th, 2026, I’ll be taking on the Manchester Marathon to raise both funds and awareness for this amazing charity and the incredible families it supports.
 
I had never heard of Sturge Weber Syndrome until I met Jake, his amazing family and their brave little boy Alfie. Now, I can’t imagine not doing something to help.

Alfie is one of the strongest little boys I’ve ever met. Despite the daily challenges he faces, he always has a smile. Sturge Weber syndrome is a complexed neurological condition and is estimated to affect around 1 in 20,000 to 1 in 50,000.

Families often struggle to access specialised care or support, which makes the work of Sturge Weber UK absolutely vital. 

By sponsoring my marathon, you’re helping support members, raise awareness, and bring comfort to families navigating life with this rare condition. 
No amount is too small, and every donation truly means the world.
 
Thank you for taking the time to read this, for donating if you can, and for helping me make a difference - one mile at a time.

More information about Sturge Weber UK: We are a registered charity supporting families. 1016688

Organizer

Ace Kelly
Organizer
England
Sturge Weber UK
Beneficiary
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