Since that day he would have constant seizures, with hypothermic blanket treatment for 4 days to get them to stop as well as medication as a secondary aid. Two weeks later the doctors had deemed little Conner healthy enough to return home, but in turn the Nizniks also realized there would be delays and that this would all have long-term side effects. At age 1, Conner's debilitating migraines began to return. To make matters worse, just half a year later it was discovered that Conner had a tumor form on the back of his head, with doctors only advising to keep a close eye on it. The tumor continued to grow to that the size of a golf ball, resulting in the worsening of his migraines by age 2. It was not until Conner had turned 2 that the doctors started to treat his migraines and seizures. Six months later his desmoid tumor became even worse and it caused his seizure activity and migraines to worsen. They started treatments to eliminate the mass to see if it would stop some of the issues and possibly improve his constant migraines.
The only place with the treatments and help that Conner needed was MUSC, in Charleston. This was a considerable drive from home for Denise, where she would take Conner, accompanied by Viola, her oldest child, for weeks at a time while the doctors worked diligently to provide aid for Conner. They performed countless checks, MRI's, bloodwork, and ran just about every type of test imaginable under the sun. This included treatment for his seziour activity. The different EEGs and treatments had to be split up over several weeks. Because of this, Denise and Viola would bring Conner to MUSC for his treatments and appointments while Randy stayed at home to tend to their other children, Emma and Dylan, and to maintain their home.
Denise was left with no choice but to constantly pay for hotels and food to travel to Charleston so that Conner may get the help that he needs. Medical bills have sky-rocketed, reaching their all-time high and totaling over $142,000, not to include the hotel costs and expenses for food and other bills. The treatment for Conner is an ongoing battle and he still needs ongoing treatments and therapists and medication to help him with what we hope one day is recovery of all these ongoing issues. It was not until recently that Emma has also been found to have pertinent health issues, for which the underlying cause is still being determined. All of this has taken a major toll on the Niznik family, and despite it all, Denise has gone out of her way and put even her own health aside along with her health problems out of sheer love for her son to ensure he gets help. Conner is a fighter and has been since the very beginning. He is a sweet little boy with love for all things. Because of this, the Nizniks are reaching out for any help at all that they may get to assist with the medical bills, hotel and travel expenses, as well as the loss of work that Denise has not been able to fill so her family will be taken care of. Any amount will help, and we thank you dearly for your support.
- Holly Sullivan
- Zumbathon X Gym
- RUTHMARY PARIS
- Lauren Scheurich
- Kat & Nick & Zoo
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more