We spend most of our time in the hospital.2 -3 weeks each month. Caring for a child with major health issues is rewarding as a parent but can be overwhelming financially. Living at the hospital is very expensive, just eating alone is a large expense. Add travel due to the hospital and doctors being in Jacksonville (we live in Fernandina) and the other expenses pile up fast. Now comes the fact that we are not able to work while at the hospital and have less time to work or generate new work when we go home due to caring for Jake. This makes things really tough because all of our bills and normal expenses continue along with all the extra expenses that go along with caring for a child with major healthcare issues. We have done everything we can to survive financially even with all the help our parents can give we don't come close to "making ends meet".
We are doing every thing we can to save Jake's right arm. We don't have insurance, we have medicaid right now but we are reaching their hospitalization limits . We have exhausted all our financial resources just trying to survive and care for Jake, weather its weeks in the hospital or home care. This week makes 3 out of the last 4 we have spent in the hospital and we don't know when he will be well enough to go home. Thanks to family and one of my amazing clients we have made it this far but we are out of resources.
We are not asking for a hand out, I have a Pressure Washing business and will take any work available. Scheduling may be tough due to my son's health problems.
Please remember to be thankful for every day with your family, good or bad, sick or healthy, just together as a family...
I felt like I needed to explain another part of the financial need. Apart from the expense of eating and living in a hospital away from home, which is really expensive. We are having another problem. We moved into my parent's garage (put up 2 walls installed a window A/C unit a space heater and laid carpet) to reduce cost of living not associated with the hospital. The only assistance we have is Jake is on Medicaid. We just found out he will no longer qualify for this medical assistance if we do not move out of my parents house. When you apply for medicaid your eligibility is based on household income. Even though we spend more in less than a week on Jake's care than my dad makes in a year, this is not considered.
I would love to just get a job with medical benefits to solve this problem. But due to the demand for my time to help care for our son this is not an option.
DonationsSee top donations
- Debbie Wingate-Rehm
- laura Dotson
- saye bill and krista
- Cory Maumenee
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Contact us with your questions and we’ll answer, day or night. Learn more