Hi All,

Trish again, I just wanted to update this post.

As many of you know my grandsons Stevie and Colton have been diagnosed with Familial Hemophagocytic Lymphohistiocytosis type 5 (FHL-5) an extremely rare autoimmune condition in fact they are the only siblings formally diagnosed in Australia making Stevie the first bone marrow recipient for his condition at Westmead Children’s Hospital last year.

Now Colton is in hospital recovering from his bone marrow transplant , with many complications and worries. His stay will also last a few months leaving the family under extreme pressure mentally, physically and financially. On top of all of this Leannes second eldest son. ( Nathan, 22, the one who donated his Bone Marrow for Stevie ) was ran over by a garbage truck and passed away.

Now a funeral needs to be arranged, paid for and held.

The family have lost wages during this time and the financial responsibilities just keep piling up, adding to their stress, not to mention they brought a car from Western City Autos at Car City that now sits in the driveway while Leanne disputes this while paying off a loan for a car they cannot drive and on top of that my son Steve has a back injury has been cut off Worker’s Compensation.

They are not entitled to support from charities such as Red Kite, Cancer Council, Camp Quality ect because the boys have an autoimmune condition however they go through the same process as cancer sufferers.

This time it has taken a further toll on the family as Colton is so young he doesn’t understand. BMT did not take and Colton will now need to go through it all again, once they have managed to get him as well as can be after all the problems caused by the first attempt.

Please donate and if you can’t sharing would be wonderful.

Thank you for your support so far.