Stand By Steven-Battle With Cancer.

Stand By Steven:

He Continues His Fight
With Lymphatic Cancer. 

PLEASE CLICK THE
FOLLOWING LINK FOR
VIDEOS AND PICTURES:

https://drive.google.com/folderview?id=0B7BHzzr9whXkX2VBa2phQVRzenM

1. Non-Hodgkins Lymphoma
     STAGE III B  (Follicular)
     GRADE II       (Indolent)
     No cure

2. Gorlin Syndrome:

      RARE GENETIC DISORDER
      (Mutated Genes) 2 strands
       that have never been seen
       before. No cure and actively
       at an advanced stage. 

3. Squamous Cell Carcinoma
     Spreading rapidly and has
     been surgically removed
     from my face repeatedly. 

4. Chronic Myeloproliferative
      Disease:

     (Bone Marrow Is Not
      Producing My Red Blood
      Cells Properly)

      Just Finished 9 Months of
      R-CHOP CHEMOTHERAPY.

      Now on 3rd cycle of:

      RITUXAN INFUSION
      THERAPY.

The Surgery on my jaw was
finally done on Tuesday
December 6th at 7:30pm
performed at St. Rose Hospital.
It was a rough recovery and I
had a typical  and terrible side
effect from the local anesthetic (proponol). The day after
surgery I felt like I had been
hit by a truck. I guess that's
common when you are on
Rituxan and they put you under.

Sadly during the surgery
he discovered another
Malignant Neoplasm and
removed it at the same
time. It was very discouraging
to find out that they want me to
begin a new regiment of
Chemotherapy that is fresh out of clinical trials. Even though
things keep getting harder I'm
determined to keep my spirits
high.

My Family and Friends have lost
so much while I've been battling this.

I'm trying to delay writing a
bucket list just yet. I must say
though I'm getting scared as the treatments have been getting
less than desirable results. 

Advanced Non-Hodgkins
Follicular
Lymphoma Stage IIIB.
(Grade II Indolent)
This type of Lymphatic Cancer
 that is indolent tends to be very.  resistant to treatment and
 usually returns 80 plus percent.  of the time within two years
 even if they are successful at
 acquiring a remission status.

This rough and long journey
 began with a trip to my doctor.  due to my health deteriorating.

 I was diagnosed with a rare an
 aggressive form of skin cancer
 in October of 2012. They gave.  me 11 Months to live if I didnt
 have several very invasive
 surgeries on my neck.
 
Since then I've had a total of17
Mailignancies that required
surgeries to remove them.  As
time went by my overall health
continued to worsen even
though it seemed as if we were
getting the upper hand on the
skin cancer.  Then in December of 2015 after 2 surgeries on my
left cheek I was sent for an MRI of both shoulders for an
unrelated injury.  The results
came back quickly because they inadvertantly found red Marrow Reconversion process
happening in each shoulder.  
This discovery plus all the prior Malignancies were finally
enough reason to get a referral
to an Oncologist at the
Comprehensive Cancer Center.  
After endless blood work and
extremely expensive  genetic
testing plus the PET SCAN they performed, it was confirmed
that I had Lymphoma and a very rare genetic disease called
GORLIN SYNDROME.

Multiple sites in my abdomen
(Intra-Pelvic) (Peritoneal) and
(Para-Aortic) have as many as 36
Tumors.  I was admitted to the
Hospital to have a Lymph Node
Biopsy to confirm the diagnosis and it was indeed the worst
possible case scenario. They
determined that I had the
Lymphoma for close to 2 years
before they found it. Combined with the Gorlin Syndrome it
explained why I had been so sick for so long and in excruciating
pain.  

I was sent back to the Hospital
to have a Power Port implanted
in my chest so I could begin
Chemotherapy immediately.

My Social Security Disability had been pending for 23 months
even with a cancer diagnosis. I
cannot work and I've  been
losing everything. 
My Mother has also sacraficed
and lost almost everything she
owned to help take care of me
and she's already on a  fixed 
income.
Everything I had left in this
world is gone except the people I love. Thank God for that. 

Any help or amount would be
forever appreciated. We have
exhausted every resource
available to us. Because of your generosity we've been able to
obtain the medication,
treatments, genetic testing,
pay bills and  fix a 
transportation situation.

There's much more that's still
out of our reach and we simply don't know what the future
holds. Trying to utilize every
resource available through
government programs.

As additional needs surface
we can only hope and pray
that you'll continue to share
and support our campaign. 

From the deepest part of my
heart, I love you all!

Steven Ward