My name is Brendan Doran and this is my story.
In late 2017, I was diagnosed with a genetic heart condition called Hypertrophic Cardiomyopathy. This condition affects about 1 in 500 people and is responsible for Sudden Cardiac Death (Sudden Adult Death Syndrome). I recently discovered that stem cell therapy has been found to be hugely effective in treating my condition, and I have been accepted for treatment by the Stem Cell Institute, Panama. This exciting news is hampered somewhat by the cost, but I’m hoping that’s where you can help…
Stem Cell therapy is a process where stem cells are taken from your own body, grown up to a huge number (about 140 million) in a lab, and then are given back to you through IV injection. These cells seek out areas of disease or damage and repair it. They also turn off any immune responses that progress the disease further. I believe this treatment could completely reverse my condition, and save my life. https://www.cellmedicine.com
I wont beat around the bush about the cost of this treatment. I have recently been evaluated by this clinic and accepted for treatment for this condition. The cost of one treatment for this condition has been quoted at 29,150 USD – about 25,000 euro. This is the amount I am looking to raise with your help and generosity! The cost of air travel to Panama is not included in this figure.
I have been diagnosed with a genetic heart condition called Hypertrophic Cardiomyopathy. This condition affects about 1 in 500 people and has a huge range of symptoms depending on the stage. One of the main concerns with this condition is that it is responsible for Sudden Cardiac Death or “ Sudden Adult Death Syndrome”, and this can occur at any stage of the condition. This has been seen many times with athletes dropping dead on the field. It does not even require the person to be engaged in high intensity activity. It just required enough disruption in the electrical activity of the heart to trigger the fatal rhythm. As this condition progresses, this becomes more likely.
I started feeling that something was not right around the age of 18 or 19, with strange sensations in my chest that felt like my heart skipping a beat, then beating rapidly, followed by kind of adrenaline rush and sweats you get when there is a jump scare in a movie or someone jumps out at you, that kind of feeling.
When I went to the doctor, I was given a 3 lead ECG , told that I was fine, probably stressed and sent home. I went with this doctors decision even though I kind of knew that wasn’t the case as I have always lived a stress free life and I felt pretty good at the time. I tried to forget about it but every once in a while I was reminded that something wasn’t right with this uncomfortable sensation in my chest, a sensation of a more intense heartbeat, skipping beats and the kind of anxiety that follows with that.
Through the next number of years through college I tried ignoring this as I had a lot on my plate with exams, girlfriends and the good oul craic that comes with college life, and I thought to myself “ hey I’m ok, I’m active healthy and feel good most of the time.”
Fast forward to about the age of 26, I started feeling the symptoms a little more frequently and a little more intensely. My heart would skip 2-3 beats at a time, then beat rapidly for a few moments. My father died suddenly when I was 16, and having this constantly in the back of my mind I thought enough was enough, I was going to demand some answers to this.
I went to a GP in Galway and pleaded with him to have a full cardiac investigation and thankfully he listened to my story, took notes on my family history and scheduled a stress test and echocardiogram. I also explained to him that I believed stress was not a factor in this and that I led a pretty stress free life and was generally a pretty relaxed person.
So I did the stress test which showed no abnormalities, doctor said it was clean. I went for the echocardiogram and about a week later I was called in to the hospital to be told they had found something they wanted to discuss. I was asked questions like ‘ Any mention of cardiomyopathy in you family, any sudden cardiac deaths etc”. I was told I had an enlarged septal wall ( the thin wall that runs down the center of the heart dividing the 4 chambers) and that this was characteristic of hypertrophic cardiomyopathy. I was told they needed to do a cardiac MRI to confirm the diagnosis. This took nearly a year to get an MRI (our healthcare system leaves a lot to be desired), and a few months after that to get a review of what they had found in the MRI.
My MRI confirmed the diagnosis of HCM and the doc recommended family screening and that the condition be monitored on an annual basis, as they believed the symptoms to be not severe enough to offer treatment (treatment here consists of beta blockers, calcium channel blockers to control rhythm, septal ablation and myectomy when the heart enlarges too much) I have to say I was delighted not to be offered any of those treatments, as I do not want my heart ablated or part of the muscle cut off, these are at best considered experimental and have had very mixed results if you read the journal article publications.
The mental aspect of having to accept that sudden cardiac death is very real with this condition can be challenging especially with regular reminders when the symptoms decide to kick in. A positive outlook on life and an excellent support network of friends and family have given me the strength to deal with this.
I am a huge fan of Joe Rogan. I think the man actively makes this world a better place – and when listening to a recent podcast he had with Dr. Neil Riordan on the topic of Stem Cell therapy and the treatments and results they were having at his clinic, I discovered that this clinic is using stem cells to treat all different types of heart failures (among many other conditions). I started searching for any potential clinical trials that were happening in the hope that I could enroll in one, and to my absolute astonishment and amazement I learned that this particular clinic had not only treated many types of end stage heart failures and cardiomyopathies, but were actually able to completely reverse them in many cases.These studies are published and available for anyone to read, they are peer reviewed and I urge any of you looking at this to check out what is happening at Dr Riordans Stem Cell clinic in Panama – Start by watching the podcast ( Joe Rogan, Dr Riordan and Mel Gibson) It could change your life and has certainly lit a fire under my feet to go get this treatment.
As I mentioned before, my father died suddenly at age 54 from an undiagnosed heart problem. No post mortem was done so it is difficult to know if he had the same condition. My cousin (first degree relative) died recently, and suddenly in his early forties from an undiagnosed heart condition. There were no warning signs and it is said he was generally in good health. This resonates as I have a 2 year old son and I would not like for him to go through what I did as a teenager. I want him to have a father in his life for as long as possible.
Dr Riordans clinic, as well as the Okanyos center for regenerative medicine are now treating this condition with stem cell therapy with dramatically positive results. They treat many kinds of cardiomyopathy all the way as far as end stage heart failure, and once again I urge you not to take my word, but to go check this out for yourself. As someone with a scientific background , I have taken the time to digest these studies (available on “pubmed”) and I am astonished and eager to try some Stem Cell therapy. These stem cells are taken from your own body ( so there are no ethical concerns like there used to be with embryonic and umbilical stem cells- which do not work anyway).
They are called mesenchymal cells (MSC’s) and we all have them, just not enough of them. In this therapy, they are extracted from your tissue. The best ones are isolated (the cells that are more dominant in cytokine expression), they are grown up to a huge number (about 140 million) in a lab and they are given back to you through IV injection. These cells seek out areas of disease or damage and repair it. They also turn off any immune responses that progress the disease further.
I wont beat around the bush about the cost of this treatment. I have recently been evaluated by this clinic and accepted for treatment for this condition. The cost of one treatment for this condition has been quoted at 29,150 USD – about 25,000 euro.
I’m sure my heart grew another few mm upon reading that but it did not deter me. It only motivated me to rise to the challenge, and challenge accepted!
That is why I am reaching out to each and every one of you that may be able to help me. Those of you who know me, those of you who don’t and would like to - if you can help in any way, either by promoting this page or providing any kind of donation I would be eternally thankful. I would want to share my story and progress with each and every one of you and maybe help to educate the world on the amazing benefits of this therapy, which I fully believe will treat and hopefully cure this condition. I want to be an example of the success of this breakthrough therapy, and I would gladly place my life in the hands of this clinic after studying the results they have produced.
I hope in the future that stem cell therapy is an affordable treatment for anyone who wishes to try it. If you have a loved one who is sick, injured, or has a degenerative condition or heart disease of any kind, there is a good chance this clinic can sort you out.
I will finish by saying thank you all from the bottom of my enlarged heart to anyone who helps me and to all those who have helped me get this far in my journey. You all know how much you mean to me. Thank you all for enriching my life.
Acceptance Email From Clinic
- Bertina Whitley
- Una Canney
- Rosaleen Claire Curran
- Alex Hurley
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