Standing With Selah

Selah Omo was born as a miracle baby.  Her birth was a fight from the begining, and through the grace of God and the support of her family, she survived a battle that nearly took her life.

A few months later, her parents discovered that Selah had a genetic disorder called Hemihypertrophy. (Read more about this disorder below).  Although there are many symptoms of this disorder, the most visible characteristic is when you see pictures of Selah  standing up.  One leg is much larger than the other, and it causes severe pain when she walks.  

(Pictured: Selah standing up.  Note that her right leg is much more developed than her left leg.)

In March, she will undergo an intense surgery that will involve putting iron rods into her legs that will aid in stretching the bone every day.  During that time, Selah will be confined to her house for 3 months.

We are starting this gofundme page to help her parents, Kei and Chanelle Omo, to help alleviate the expenses that will accrue during the 3-month healing process.  Initially, the surgery had been scheduled for 2019, however, because of the rapid growth of her right leg, her doctors insisted that the surgery be moved to March 2018.

Selah's biggest wish is to have her mom at home with her during the healing process, which involves a painful daily tightening of the rods.

Please join us in supporting Selah and her entire family during this time.  If you know the Omo family, then you understand that God has a huge plan for each and every one of them.  This stretching of their resources is a step in Selah's journey toward becoming a beautiful woman of God that will have an amazing story to tell one day. 

Her father, Kei Omo, is a pastor at Grace Bible Pearlside (Kaneohe campus).  He is a huge advocate for youth ministry, and has also served as the past youth minister for all of Grace Bible Pearlside.  In addition to working as a school social worker for the Hawaii Department of Education, Chanelle (her mother) has been overseeing and teaching at the kids church for 3 years. 

You can support the family in many ways.  First of all, we would appreciate your prayers to cover them as a family unit.  Please pray for Selah's healing, that it will be complete, and that she will not lack strength, peace, comfort, and joy during the painful process.  

You can also support by sharing this post to your friends and family!

Psalm 139: 13-16
For you formed my inward parts; you knitted me together in my mother's womb.  I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well. My frame was not hidden from you, when I was being made in secret,
intricately woven in the depths of the earth. Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them.

From friends and family of the Omo's, we thank you deeply for your contributions and willingness to share this post!

Aloha!



What is Isolated Hemihypertrophy?
Hemihypertrophy is a genetic disorder characterized by overgrowth of one side of his or her body in
comparison with the other. The overgrowth may affect only one part of the body, such as the legs.
However, it may involve several different areas of the body including the arms, face, and tongue.
Hemihypertrophy is “isolated” when it occurs by itself. But, it can be one of several characteristics of
Beckwith-Wiedemann Syndrome (BWS) or another genetic syndrome. Sometimes hemihypertrophy is
not apparent at birth but can become clear as he or she grows.

Children with Hemihypertrophy may have a range of the following features:
• Overgrowth of one side of the body (hemihypertrophy).
• Uneven leg length. This may require a shoe lift.
• Large tongue (macroglossia). This can cause speech and feeding problems.
• Large abdominal organs on one side of the body. Such as the kidney, liver, adrenal glands, and
pancreas.
• Increased risk of developing certain cancers during childhood. This includes Wilm’s tumor,
tumors of the liver (hepatoblastoma), and other more rare tumors.

Donations

  • Jan Byrer 
    • $50 
    • 25 mos
  • Tanner Masuoka 
    • $25 
    • 25 mos
  • Joanne Valentine 
    • $200 
    • 25 mos
  • Michelle Toma 
    • $25 
    • 26 mos
  • Ryan & Katie T. 
    • $50 
    • 26 mos
See all

Organizer and beneficiary

Cyd Kamakea 
Organizer
Kaneohe, HI
Chanelle Omo 
Beneficiary
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