Help Lillian Continue to Thrive

Lillian is a 8-month-old baby girl with Thanatophoric Dysplasia, a rare skeletal condition that many told us she would not survive. Doctors warned us she wouldn’t make it through pregnancy, birth, or infancy. But Lillian had other plans.

She was born at 37 weeks and continues to grow, fight, and show the world that her diagnosis does not define her. Due to the rarity of her condition, many doctors did not understand how to care for her or were unwilling to provide life-sustaining treatment.

We made the heartbreaking decision to quit our jobs and move across the country to advocate for the care our daughter deserves. Since then, Lillian has undergone a tracheostomy and G-tube surgery—major milestones that are helping her breathe, grow, and continue thriving.

Caring for a medically fragile child requires around-the-clock care, specialized equipment, travel, housing near the hospital, and significant medical expenses. We are asking for support to help Lillian continue receiving the care she needs and to help bring her home.

Every donation, share, and message of support helps give Lillian the chance she was once denied.

Thank you for standing with our daughter and believing in her life.