Our sweet Kallaway, smiling through a rare diagnosis — help us give her the care she deserves

Hi, my name is Jenn, and I am Kallaway’s TT (Aunt). Recently, our family’s lives changed forever when this beautiful little girl was diagnosed with hyperinsulinism, a rare and life-threatening disorder that causes her body to produce too much insulin, leading to dangerously low blood sugar.

On June 22nd, Lindsey and Kallaway traveled to Missouri for Kallaway to attend a gymnastics camp when she started showing signs of hypoglycemia, which led them to the ER. The doctors ran blood work and found her blood sugar was low, along with dehydration and overexertion. Lindsey was told to follow up with Kallaway’s pediatrician when they returned home to Maine on Monday.

However, on Sunday morning, after a long day of travel, Lindsey went in to wake Kallaway up and found her barely conscious. Lindsey called 911, and while waiting for help, Kallaway had a seizure. Her blood glucose level was only 41. The doctors determined it was due to a lack of eating and drinking during the previous day’s travel, combined with sleeping for an extended period.

After several trips to the ER with low blood sugar levels, Kallaway was admitted on July 6th to the PICU at EMMC under the care of her pediatric endocrinologist, undergoing multiple tests and imaging. Kallaway has been diagnosed with hyperinsulinism, a condition where her body is overproducing insulin, leading to these hypoglycemic episodes. The cause is still unknown. Kallaway, Lindsey, and Kris remained at Eastern Maine Medical Center until July 24th.

On July 24th, Kallaway and Lindsey were transferred via Life Flight to the Children’s Hospital of Philadelphia, where a specialized team is ready to help. Kris then made the drive to Philadelphia with Kallaway’s older sister, Lexi. She’s currently on a medication that’s keeping her glucose levels from dropping dangerously low, and it’s a lifesaving treatment.

Update as of July 29th -

We're keeping our fingers crossed that Kallaway's PET scan today will provide the answers we need to determine if an insulinoma is responsible for the overproduction of insulin. If the doctors can identify the cause, she'll undergo surgery on August 6th. Otherwise, they'll perform another procedure to get a clearer picture.

We are reaching out with open hearts to ask for your help—whether it’s through a donation or sharing this page—to support Kallaway’s care and give her the best chance at a full, healthy life.

Hyperinsulinism is extremely rare, affecting just 1 in 25,000 to 50,000 babies. It’s not well understood by many doctors and can be very hard to treat. In Kallaway’s case, we are facing a long road of specialists, hospital stays, medications, and possibly surgery.

Despite the challenges, Kallaway is strong, sweet, and full of light. Lindsey and Kris are doing everything they can to manage her care, but the costs—emotional, physical, and financial—are overwhelming.

How Your Donation Helps:

Your support will go directly toward:

• Medical bills and specialist visits

• Blood sugar monitoring tools and emergency supplies

• Travel and lodging for out-of-state treatment

• Daily care essentials while we navigate this journey

Every donation, no matter the size, brings us closer to the stability and peace Kallaway needs to thrive and to relieve some of the stress off Lindsey and Kris as they haven’t left her side since July 6th.

Thank you from the bottom of our hearts for reading Kallaway’s story. Your kindness and support mean more than we can ever express. Whether you’re able to donate, share this page, or simply keep Kallaway in your thoughts and prayers, you’re making a difference.

With love and gratitude,

Kallaway, Lindsey & Kris