
Stand with Summer in Her Battle with Crohn's
Donation protected
Hi there! My name is Summer Spencer, I'm a 24 year old female currently fighting a very aggressive case of Crohn's disease, I've had Crohn's for 18 years since I was 8 years old, and it's always been very aggressive. For the last few years I was somewhat in remission where i was able to work, enjoy life and create a life for myself, however that unfortunately changed last year, I was working for Hy-vee as a bartender at Wahlburgers, I was the only bartender they had at the time so I had to pick up alot of hours, I went over 40 hours twice. One time at 41 hours, the second at 42 hours, not long after I went in for my low based chemo treatment I am supposed to receive every 6 weeks for maintenance of my Crohn's disease and found out Social Security Disability had cut my benefits and I was no longer able to receive the medication that keeps me alive. I of course went through the appeal process and am still going through said process and had been granted to receive my benefits through the appeal process but its been pulling teeth to get a doctor to actually listen and sign the prescription to get my medications back. With that being said I have been unmedicated for the last year which has unfortunately landed me back in the hospital fighting for my life again. Back in April 2024 I ended up with a terrible tooth infection that spread to my throat and gave me septic shock, I believe it was the sepsis that completely floored my Crohn's flare into overdrive and I have been bedridden the last 3 months ever since. I haven't been able to work, eat, sleep, walk, breathe, basically any form of living life I have not been able to do. I finally got a doctor who listens and validates me the beginning of June 2024, however the Crohn's has already done its damage. I've been in the hospital since June 15th, 2024, they found i have about 4 strictures throughout my small bowel (I had my colon completely removed and have an ileostomy bag) and basically my small intestine has narrowed down to nothing which is why I cant eat and pass anything through because the pain is just unbearable. I'm looking at another surgery, they're trying everything in their power to not operate on me for a few different reasons, 1 I am extremely malnourished, when I was admitted to the hospital I came in at 88.4 lbs, so as of right this second I'm not even a candidate for surgery. 2 I don't have alot of intestine left for them to take and operate on. They're concerned with how I would heal especially since this would be a surgery they can't do laparoscopically. Right now I have a PICC line in and I'm getting IV TPN (nutrition) through there, and IV prednisone. They're hoping to try to turn things around with just that but my surgeons concern is the one stricture is so bad with fibrosis and scar tissue now that it may not respond to the steroids and that's what we'd have to operate on. Either way I'm looking at a good few weeks here in the hospital and even longer out of work. I bartend and unfortunately have lost my jobs due to this flare up and I wont be able to get back out there for probably another few months until I am completely healed. Unfortunately, bills don't stop when you're on your death bed, so that's why I am creating this gofundme to try to alleviate the financial stress of being behind on my bills while I'm trying to save my life. If there is anyone gracious enough to donate, I would greatly appreciate every cent from the absolute bottom of my heart. I cannot explain the stress I have been under with everything and money should be the last concern of mine while I'm fighting but of course as an adult life just does not happen like that. So again, any prayers, donations, kind thoughts, vibes any support is the most appreciated through this time. I have been posting updates on my Tikok and Facebook for anyone interested in looking for those and I will keep updating on here as much as I can as well.
Thank you all so much.
-Summer
Organizer
Summer Spencer
Organizer
Edmund, WI