Stand with Morgan: Epilepticus status survivor

Hi there, My name is Morgan Bolen I am an epilepticus status survivor and I am reaching out for help from my community, loved ones, family, and epilepsy community. I am currently having very difficult medical conditions at age 29. Fighting my severe epilepsy and stage 4 arthritis that is now spreading through my body. These past 15 days have been the scariest moments for me ever. Recently been admitted to the emergency room brain center because I became status epilepticus and went into a coma for 5 days. This was the closest my seizures have ever gotten to killing me. My seizures were never this bad to were I needed a breathing tube.. I wasn’t coming back for days... I was having both types of status epilepticus.. it took at least 5 days for me to know where I was and why I was there.. and to stop using the bathroom on myself. This really hurts me to have to write all out. I’m sorry for having to ask for help.. but I know this rode to recovery is going to be so hard.. and I truly need all the support I can get. Staying stress free is one of the main key points to trying to keep myself from having seizures. Work is not an option. Im neurologically impaired now. This status epilepticus has given me brain damage my normal seizures didn’t. The pain mentally and physically is so much.I’m fighting for my disability more than ever. but it’s taking so long and it’s stressful. Any and all donations are going towards keeping me alive, safe and as seizure free as possible.

became “status epilepticus” and its very rare to become this way.

any donations will go towards all my medical needs Medicaid won’t cover: such as safety bed guards, day rehab transportation, my new wheelchair, advanced medical body tape, shower seat, advanced overnight camera that could help alert seizures. and medical compression socks. There’s a lot more precautions I must take now that I’m status epilepticus.. fall prevention has always been one but now it’s way worse I fall over differently.. everything has changed within 2 weeks but I’m blessed to still be here. And I will fight everyday to survive and regain seizure control. Thank you for all the support and encouragement anything at all will help me get through these dark times! I will be starting a day rehab therapy program for speech, occupational,and physical. Just getting my brain back to normal one step at a time just gotta move slow and take my time! Staying stress free is a huge one for me! Let’s keep up the positive vibes. COACH MARSHMELLOW IS STILL HERE. Updates will be happening all the time!