Can you imagine working hard your whole life only to become extremely sick as soon as you retire? Well that has happened to our friend Brenda. A week ago today, Brenda received the final diagnosis from her spinal tap. The UCSF Neurology specialist told her that she have Multiple System Atrophy. She has the cerebellum type called MSA-C. She cant walk without a walker, and is having speech issues and right arm tremors.She thought kidney and cardiac sarcoidosis was a disease she could live with but this is different. She misses her friends from Crown Billiards and DVPL very much.She met her wife 16 years ago thanks to DVPL and misses playing pool with her friends. She will hav

to build a ramp for her house and will have

to eventually get a motorized wheelchair

to keep her independence. Shes hoping to

get into a clinical trial in July and hope the NIH is still funded by then. SSD as well

but DOGE could change all that. Most importantly, she doesnt want to be a

financial burden for her wife Jenny in the

end. Please help if you can. Peace and

love to you all