Support Baby Ezekiel and His Family Through His Long-Term Care

We are humbly asking for your support during an incredibly difficult time. Baby Ezekiel is battling Sandhoff disease, a severely rare and progressive genetic disorder. His recent MRI results sadly confirmed that his condition has worsened, and he now requires long-term care at a rehab facility.

Due to the length of his stay, Ezekiel’s parents are no longer able to reside at the Ronald McDonald House, which has added even more stress and financial burden to an already extremely heartbreaking situation. His mother has had to stop working in order to remain by Ezekiel’s side full-time.

We are raising funds to help cover:

    •    Travel expenses for daily visits to Ezekiel’s rehab facility

    •    Emergency costs as his condition continues to change

    •    Basic living expenses while his family focuses entirely on his care

Any support—whether through a donation or simply sharing this message—means the world to us. Thank you for standing with Ezekiel and his family during this unimaginable time.

#SupportEzekiel #SandhoffAwareness #TeamEzekiel #Zekesangels