- M
- A
- J
Hi All,
My diagnosis recently got concluded and I have 3 things. Symptomatic Epilepsy, Schizencephaly (misfolded brain) and Agenesis of the Corpus Callosum. (I dont have something in the middle to split "left from right" its just all one.) I am on different medications and its causing my cognitive functions to be clouded. I have been having trouble being around people and being in public. Having normal conversations and eye contact have been a struggle for me. Im forgetful of everything.
I am on major restrictions where I can't work, drive, or do any high-risk activities for at least 6 months from the most recent seizure(which was in April). Thats as long as i dont have another one by then. Im at risk of a seizure at any time, any day, right now. I can't be by myself either.
I'm in the process of trying to get disability, but to get approved can take months. Due to Jesse being the only income for the next at least 6 months, we can really use the help with medical bills, and other house bills as well. It's really tough for us with me not being able to work or even be alone. He's working on a pay raise/promotion, but it's not happening quick enough. Things are piling up more and more as time progresses.
The mental strain, finances are causing me does not help me with relieving stress factors either. I've been struggling.
I know everyone's in a trying time right now, but anything, anyone can do to help us would be greatly appreciated.
Thank you so much.
Sarah



