Stand by Liam: Overcoming Health Challenges

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$6,419 raised of 

Stand by Liam: Overcoming Health Challenges

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Hello everyone, I am Liam's sister helping my parents out and I would like for everyone to support Liam through this really difficult journey.

On the summer of 2023, after celebrating Liam's birthday he started getting sick everyday. First he had rashes, we really didn't think nothing of it until he started getting fevers of 105+. We took Liam to the ER and the doctors couldn't find what was provoking his fevers and rashes. They admitted him for a week and got tested for salmonella, it came back positive. He got medicine for it but everyday he just kept getting worst. He got admitted back on July with the same things and the doctors couldn't find what was wrong with him so they just gave him medicine and got send back home. At that point, he was fine until a month later after being home he got sick again with REALLY high fevers. He got admitted back on August, the doctors did further exams and finally found out what was wrong with Liam. He had Granulomatous Chronic Disease.

What is Granulomatous Chronic Disease?
Granulomatous Chronic Disease refers to a group of long-standing inflammatory conditions characterized by the formation of granulomas, which are organized collections of macrophages, often accompanied by lymphocytes and fibroblasts. These granulomas form in response persistent irritants, pathogens, or unknown triggers that the immune system is unable to eliminate. This can lead to significant morbidity. In organs like lungs or liver, it may obstruct normal tissue architecture. 5 to 40 cases per 100,000 people annually get this disease.

After Liam was diagnosed with granulomatous chronic disease, they required for Liam to take an injection three times a week, that helps his immune system fight with fungi, bacteria, and viruses. He also takes two medications everyday that also help with the same things. Liam's doctors saw that he wasn't getting sick anymore and he started living his life normally.

For the whole 2024 and a half of 2025, we went to go see the doctors for a follow up visits until one day they gave us to very important options for Liam to keep doing better. They told us that we could keep doing the injections three times a week for the rest of his life or do a Bone Marrow Transplant (BMT). When they started explaining to us about the BMT, we were scared of all the treatments they were going to do on Liam. But if we kept doing the injections eventually it was going to get used to his body and not do any effect towards his immune system. It was a hard decision for my parents and I but it was the best.

We head on and decided with the transplant. On May 26, 2025, he got admitted to the hospital to start with two of the surgeries that were necessary for the transplant. In the hospital they also started doing a couple of sessions of chemotherapy to kill the rest of his cells and immune system.
All surgeries Liam got:
  • The port - a medical device placed under the skin in the chest area to put medications, fluids or drawing blood. On Liam its on the left side of his chest.
  • G-Tube - A feeding tube inserted through the abdominal wall into the stomach allowing delivery of nutrition, fluids and medication.
  • Broviac Line - It's a tube inserted into a large vein in the chest and tunneled under the skin, with one end exiting the body.

He got send home on June 5 and got admitted back on June 9 to continue with the chemo and his last surgery. On June 19, it was the day of his transplant and it was on of the hardest day of our lives. The week after his transplant, Liam wasn't the kid I knew. He was really sick with fevers, throwing up, barely eating, his hair started falling, he wanted to sleep all day because he was in pain shaking, and even got this really bad rash all over his body. The Liam I know is super energetic, always playing around and laughing. My mom is currently staying with him at the hospital while my dad works. My dad doesn't even want to work anymore just to be with Liam and support him through this hard time. When my mom FaceTimed us we couldn't see Liam without crying.

If you guys have the ability to help it would mean everything to us,
Things we need help with:
  • Food
  • Transportation
  • Medical Bills
  • Housing Expenses

We trust God and believe that Liam is going to get better. God has a plan for him and I know his plan is perfect. We pray for him to get through all of this and be home to the Liam I know. Our house feels empty without Liam. Whether you have the ability to donate or not and please pray for Liam's complete healing.

Organizer

Phillip Aguilera
Organizer
Summerville, SC
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