My daughter Isabella is currently fighting for her life with Stiff Person Syndrome (SPS), a rare and debilitating neurological disorder that causes severe muscle stiffness, painful spasms, and loss of mobility. This is a life long disease that is unfortunately progressive and she has a long journey ahead of her. We are struggling to find a treatment that works to keep her pain levels tolerable. She is progressing much faster than we thought she would she is already having lung issues which is said to be at the end stages we are hoping this is not the case. She has 3 children ages 6,5,and,3. 

She has not been able to work since December due to her health. While she is waiting for disability to be approved, our family is struggling to stay afloat. Her husband are raising three beautiful children, and right now the financial burden of medical bills, travel to appointments, and everyday expenses is overwhelming.

Your support would go directly toward helping her family with:

    •    Medical and treatment costs not covered by insurance

    •    Travel expenses for ongoing care

    •    Household needs and supporting our kids

This journey has been incredibly hard, but we are determined to keep fighting for her health and family. Any amount, big or small, means the world to us. If you’re not able to give, please consider sharing this page to help spread the word.

Thank you from the bottom of my heart for your kindness and support.

— Isabella & Family