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Update: June 2, 2023
Found out today that my food stamps have been cut off because of the fact that I can't work... We sent in the papers from my doctor saying I can't work and the workforce center still let the food stamp office cut me off... Can't get my home health care set up for some reason and I am going to have to pay for my ostomy supplies myself...
Update: May 31, 2023 So my Dad got some stuff to clean my building, they pulled everything out and Daddy sprayed everything, but because he didn't know that he was supposed to do anything else, he just let it dry and him and some friends put everything back... You are supposed to spray, wipe down and if possible rinse, if not possible that part is okay... I just came home yesterday from my 9 day stay in the hospital where they replaced my kidney stents and I had my colostomy bag surgery... Home Health is supposed to be getting a hold of me today... I still have 3 more rounds of chemo to go... The pain at times can be more than I can bare, but I'm trying... I'm just asking for a little bit more help for Daddy to do my building again and for his diesel to get me to my appointments... My SSI is dragging it's ass... Thank you ahead of time for even reading this!!!
UPDATE: JUST WANTED TO GIVE YOU ALL AN UPDATE WITH HOW EVERYTHING HAS BEEN GOING WITH ME SO FAR I'VE HAD TWO PROCEDURES TO STOP BLEEDING SEVERE BLEEDING IN MY RECTUM THAT WE THINK IS FROM THE FISTULAS OR FISH TO LOVE WHICHEVER ONE OR TWO THEY HAD TO GO INTO MY GROIN ON THIS LAST ONE I HAD TO STAY WEEKEND GALVESTON AND IT'S KIND OF STRAIN ON MY DAD LORD KNOWS, MY SURGERY TO FIX THE FISTULA IS STILL MAY 22ND. AT THIS TIME I WOULD LIKE TO THANK EVERYONE WHO DONATED TO ME AND MY FAMILY CUZ IT DID GO TO ME AND MY FAMILY AND HELP BUY DIAPERS AND HELP MY FUEL AND HELP BY DINNERS WHILE DADDY WAS SITTING BY MY SIDE IN GALVESTON SO HE CAN HAVE SOMETHING TO EAT AND I CAN'T THANK YOU ENOUGH I REALLY CAN'T BECAUSE IT MEANS THE WORLD TO ME THAT YOU TOOK THE TIME TO EVEN READ THE STORY GOD IS GOOD AND I CAN'T SAY THAT ENOUGH I STILL HAVE A LOT AHEAD OF ME AND I'M TRYING SO HARD NOT TO LET IT OVERWHELM ME THE SHOCK TEAM DID COME AND SEE ME WHILE I WAS IN GALVESTON THIS LAST TIME THEY PUT ME ON ATIVAN ATIVAN FOR MY NERVES SO FORGIVE ME IF THIS HAS A COUPLE OF EXTRA WORDS ANYWAYS I WANT TO THANK ALL OF YOU AND YOU YOU ALL WILL RECEIVE A BLESSING BY GOD WITHOUT A DOUBT EVERY ONE OF YOU AND I TRULY AM JUST AMAZED THANK YOU FROM THE BOTTOM OF MY HEART MY FAMILY'S HEART THIS IS THE MOST AMAZING GIFT THAT COULD HAVE BEEN GIVEN TO US AND THANK YOU THANK YOU THANK YOU THANK YOU IN JESUS NAME AMEN...
Hello there everyone, I am doing this again because my cancer has spread to my lungs... My Dad's house and my little building both still have black mold... I am going today to see if I can stay at the Anayat House after my doctor's appointment... It does cost, but it's $20/ day versus the Mead House which is $40/day... I have found a travel trailer in good condition for $1000 in Dayton that I can get and set up in my Dad's yard, that way I won't be in the mold while he gets it all taken care of... We are struggling with expenses for my trips to UTMB in Galveston and my trips to St Elizabeth's plus to my chemo infusions... April 24, 2023 I have to go to Galveston for imaging and to sign consent forms for my surgery May 22, 2024... The surgery is for a rectovaginal fistula that formed due to the tumor attaching itself to the rectum wall and as the chemo works and kills it, it is tearing holes in the wall between my rectum and vagina... Two days ago I had to have a procedure to stop the bleeding in my rectum... I am supposed to hear from SSI this week, but my application is still at 73%... My Dad lives off of his social security check and he is currently supporting me and my youngest son, plus footing the bill for my diapers and medicines that my insurance doesn't pay for, which can be expensive... His truck is a diesel and all these trips are taking a toll... Now I have to see a thyroid specialist because my labs are showing that they are messed up... Last time I did this all the support I received was just amazing and I didn't want to do this again, but we need help! Thank you for your time just reading this, God Bless and just thank you again from the bottom of my heart! ❤️❤️